NATIONAL ORGANIZATION FOR RARE
Data sourced from IRS 990 public filings
NATIONAL ORGANIZATION FOR RARE NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.
Annual Revenue
$50,676,798
Known Funders
33
Grants Received
53
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $50,676,798 | $43,034,462 | $72,321,740 |
| 2023 | $66,397,453 | $52,832,739 | $65,154,464 |
| 2022 | $59,872,383 | $48,420,739 | $49,542,120 |
| 2021 | $43,188,172 | $57,720,517 | $37,875,246 |
| 2020 | $42,843,360 | $52,712,119 | $52,774,540 |
| 2019 | $52,413,377 | $41,789,694 | $61,751,096 |
| 2018 | $47,123,099 | $34,074,818 | $50,838,028 |
| 2017 | $48,131,131 | $32,990,742 | $38,279,763 |
Top Funders
TUCSON, AZ
TUCSON, AZ
TUCSON, AZ
Mountain View, CA
SILVER SPRING, MD
SILVER SPRING, MD
SILVER SPRING, MD
SILVER SPRING, MD
Los Angeles, CA
Los Angeles, CA
Showing top 10 of 33 funders.
Key Personnel
From 2024 IRS 990 filing
JILL POLLANDER
VP PATIENT SERVICES
ALEXANDRA MOORE
VP OF DEVELOPMENT
PATRICK COLLINS
VP COMMUNITY & CORPORATE AFFAIRS
PRASHANT GOEL
VP INFORMATION TECHNOLOGY
EDWARD NEILAN
CHIEF MEDICAL & SCIENTIFIC OFFICER
KELLEEN ESPERIAS
CHIEF STRATEGY & OPERATIONS OFFICER
NEETA KOTECHA
VP & CFO
PAMELA GAVIN
EVP (UNTIL 5/24)/CEO (AS OF 5/24)
LORNA WEIR
DIRECTOR
TOM KELLY
DIRECTOR
Showing 10 of 21 key personnel.
Frequently Asked Questions
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