NATIONAL TUBEROUS SCLEROSIS ASSOCIATION
Data sourced from IRS 990-PF public filings
Funds research and support programs for individuals affected by tuberous sclerosis complex, primarily through grants to hospitals and organizations focused on rare disorders in Silver Spring, MD.
Grants (Last Year)
$594,369
Total Grants on File
71
Recipients Funded
19
Giving History
| Year | Total Granted | Grants Made | Avg Grant |
|---|---|---|---|
| 2024 | $594,369 | 9 | $66,041 |
| 2023 | $1,265,616 | 26 | $48,678 |
| 2022 | $1,315,222 | 24 | $54,801 |
| 2021 | $834,756 | 12 | $69,563 |
Top Grant Recipients
QUINCY, MA
SOMERVILLE, MA
SOMERVILLE, MA
QUINCY, MA
QUINCY, MA
QUINCY, MA
Boston, MA
SOMERVILLE, MA
CINCINNATI, OH
Showing top 10 of 71 grants on file.
Officers & Trustees
From 2024 IRS 990-PF filing (data available for 2 filing years)
JAYE ISHAM
CHIEF OUTREACH OFFICER
LISA MOSS
VICE PRESIDENT, DONOR RELA
DEAN RAGER-AGUIAR
VICE PRESIDENT, TRANSLATIO
STEVEN ROBERDS
CHIEF SCIENTIFIC OFFICER
WILLIAM JOSEPH
BOARD CHAIR
PAUL WAXLAX
VICE CHAIR
BRITTANY SMITH
TREASURER
LESLEY HOLMES
SECRETARY
DEREK BAUER
DIRECTOR
FRANCES BRIONES
DIRECTOR
Showing 10 of 33 officers and trustees.
IRS Filing History
NATIONAL TUBEROUS SCLEROSIS ASSOCIATION has IRS 990-PF filings on record for 2 years, spanning 2023 to 2024.
Frequently Asked Questions
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