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NATIONAL TUBEROUS SCLEROSIS

SILVER SPRING, MDEIN: 95-3018799Website

Data sourced from IRS 990 public filings

NATIONAL TUBEROUS SCLEROSIS TO IMPROVE QUALITY OF LIFE FOR EVERYONE AFFECTED BY TUBEROUS SCLEROSIS COMPLEX BY CATALYZING NEW TREATMENTS, DRIVING RESEARCH TOWARD A CURE AND EXPANDING ACCESS TO LIFELONG SUPPORT.

Evidence-Based/Data-Driven/Effective Altruism
People with Disabilities
National
Low-Income/Economically Disadvantaged
Research & Evaluation
Disease-Specific Services
Grantmaking & Regranting
Medical Research

Annual Revenue

$10,000,895

Known Funders

29

Grants Received

63

Financial History

YearRevenueExpensesAssets
2024$10,000,895$8,660,018$17,254,701
2023$10,016,383$8,467,648$16,085,768
2022$8,909,542$8,063,684$14,827,937
2021$9,015,987$6,869,562$14,046,866
2020$5,128,164$5,422,190$11,657,873
2019$6,716,234$5,639,335$10,351,316
2018$5,491,441$5,868,533$9,281,566
2017$4,742,804$5,321,297$9,757,301

Top Funders

$2,300,000 (2023)
$572,625 (2023)
$308,000 (2022)
$239,000 (2024)
$226,000 (2021)
$100,370 (2022)
$100,000 (2021)
OPL Charities

Portsmouth, NH

$75,000 (2023)

Showing top 10 of 29 funders.

Key Personnel

From 2024 IRS 990 filing

J

JAYE ISHAM

CHIEF OUTREACH OFFICER

Highest Compensated
L

LISA MOSS

VICE PRESIDENT, DONOR RELA

Highest Compensated
D

DEAN RAGER-AGUIAR

VICE PRESIDENT, TRANSLATIO

Highest Compensated
S

STEVEN ROBERDS

CHIEF SCIENTIFIC OFFICER

Key Employee
C

CYNTHIA ARCURI

CHIEF FINANCIAL OFFICER

Officer
K

KARI LUTHER ROSBECK

PRESIDENT & CEO

Officer
V

VANESSA VAZQUEZ

DIRECTOR

M

MARK SPOTTS

DIRECTOR

A

ANDREW SPERLING

DIRECTOR

S

SEAN SHILLINGER

DIRECTOR

Showing 10 of 50 key personnel.

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