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ALAGILLE SYNDROME ALLIANCE

WASHINGTON, DCEIN: 93-1243619Website

Data sourced from IRS 990 public filings

ALAGILLE SYNDROME ALLIANCE MOBILIZE RESOURCES, FACILITATE CONNECTIONS, PROMOTING UNITY, AND ADVOCATING FOR A CURE TO INSPIRE, EMPOWER, AND ENRICH THE LIVES OF PEOPLE LIVING WITH ALAGILLE SYNDROME.

Low-Income/Economically Disadvantaged
National
Education & Awareness
Policy Advocacy & Legislative Reform
Medical Research
Disease-Specific Services
Health

Annual Revenue

$647,970

Known Funders

1

Grants Received

2

Financial History

YearRevenueExpensesAssets
2024$647,970$512,614$640,163
2023$571,645$539,670$501,551
2022$585,146$554,545$468,720
2021$414,469$276,866$436,833
2020$258,130$234,277$286,569
2019$344,094$292,715$251,504
2018$169,326$231,156$214,024

Top Funders

$25,000 (2022)
$25,000 (2021)

Key Personnel

From 2024 IRS 990 filing

J

JULIA BIRD

CHAIRMAN

Officer
R

ROBERTA SMITH

PRESIDENT

Officer
S

SEAN KELLY

DIRECTOR

M

MIKE LAROSA

DIRECTOR

S

SHAMY RAVISHANKAR

DIRECTOR

T

TODD ALLEN

TREASURER

Officer

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