BATTEN DISEASE SUPPORT
Data sourced from IRS 990 public filings
BATTEN DISEASE SUPPORT OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.
BATTEN DISEASE SUPPORT has received 15 grants from 11 known foundation funders. Revenue decreased from $746,147 in 2023 to $601,964 in 2024. Most recent reported revenue: $601,964.
Annual Revenue
$601,964
Known Funders
11
Grants Received
15
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $601,964 | $967,326 | $965,863 |
| 2023 | $746,147 | $952,036 | $1,203,251 |
| 2022 | $1,099,485 | $858,302 | $1,291,125 |
| 2021 | $875,074 | $668,937 | $1,208,507 |
| 2020 | $1,228,607 | $718,019 | $1,028,529 |
| 2017 | $834,187 | $948,857 | $462,370 |
| 2016 | $812,976 | $1,054,316 | $664,508 |
| 2015 | $994,203 | $880,137 | $657,635 |
Top Funders
CHAPEL HILL, NC
DEER PARK, IL
DEER PARK, IL
DEER PARK, IL
SAN FRANCISCO, CA
HOUSTON, TX
CHAPEL HILL, NC
ORMOND BEACH, FL
INDIANAPOLIS, IN
ORMOND BEACH, FL
Showing top 10 of 11 funders.
Key Personnel
From 2024 IRS 990 filing
JOHN PATTERSON
DIRECTOR
DONNA FOGEL
DIRECTOR
ANTHONY FERRANDINO
DIRECTOR
AMY FENTON PARKER
PRESIDENT &
DARLENE ROYALTY
BOARD CHAIR
BARBARA WUEBBELS
BOARD VICE C
BARBARA MCDONOUGH
SECRETARY
FRED SURREY
TREASURER
JOHN IRELAND
DIRECTOR
WAYNE KIEFER
DIRECTOR
Showing 10 of 14 key personnel.
Frequently Asked Questions
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