UNITED PORPHYRIAS ASSOCIATION INC
Data sourced from IRS 990 public filings
UNITED PORPHYRIAS ASSOCIATION INC The United Porphyrias Association is committed to improving the quality of life of the porphyria patient community and is relentlessly focused on advancing disease awareness, research, and therapies in all the porphyrias.
National
Low-Income/Economically Disadvantaged
Education & Awareness
Policy Advocacy & Legislative Reform
Disease-Specific Services
Health
Medical Research
Education Policy & Reform
Annual Revenue
$458,112
Known Funders
2
Grants Received
4
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $458,112 | $254,907 | $1,168,122 |
| 2022 | $623,636 | $107,681 | $531,248 |
Top Funders
THE ISABEL ALLENDE FOUNDATION
SAUSALITO, CA
$10,000 (2022)
THE ISABEL ALLENDE FOUNDATION
SAUSALITO, CA
$10,000 (2024)
THE ISABEL ALLENDE FOUNDATION
SAUSALITO, CA
$10,000 (2023)
CHUBB CHARITABLE FOUNDATION
PHILADELPHIA, PA
$250 (2024)
Key Personnel
From 2024 IRS 990 filing
K
KRISTEN WHEEDEN
President
Officer
A
ANDREW L TURELL
Chairman
Officer
H
HETANSHI NAIK PHD MS CGC
Secretary
Officer
S
SHAWN WILLIS
Treasurer
Officer
R
ROBERT J DESNICK PHD MD
Director
H
HON JOSEPH CROWLEY
Director
A
ARIEL LAGER
Director
Frequently Asked Questions
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