Shwachman-Diamond Syndrome Alliance Inc
Data sourced from IRS 990 public filings
Shwachman-Diamond Syndrome Alliance Inc Shwachman-Diamond Syndrome Alliance (SDS Alliance) is a US-based nonprofit organization serving the global SDS community to improve and save the lives of people affected by SDS by focusing on research and therapy development.
Local (City/County Level)
Low-Income/Economically Disadvantaged
Direct Service Delivery
Disease-Specific Services
Health
Research & Evaluation
Medical Research
Education & Awareness
Annual Revenue
$133,392
Known Funders
4
Grants Received
4
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $133,392 | $356,884 | $575,441 |
| 2023 | $288,814 | $126,464 | $797,678 |
| 2022 | $336,751 | $102,768 | $635,328 |
| 2021 | $387,568 | $1,811 | $401,345 |
Top Funders
Silicon Valley Community Foundation
Mountain View, CA
$600,000 (2021)
Unknown foundation
$339 (2023)
JPMORGAN CHASE FOUNDATION
NEW YORK, NY
$100 (2021)
GANNETT FOUNDATION INC
NEW YORK, NY
$50 (2022)
Key Personnel
From 2024 IRS 990 filing
L
Lotien Huang
President
Officer
W
William Chen
Treasurer
Officer
M
Marcelo G DeCastro
Secretary
Officer
D
Dora Erdos
Member
I
Indrani Chatterjee
Member
E
Eszter Hars
CEO
Officer
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