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LISSENCEPHALY FOUNDATION INC

Shasta Lake, CAEIN: 84-1827899Website

Data sourced from IRS 990 public filings

LISSENCEPHALY FOUNDATION INC SUPPORT OUR NONPROFIT​How to help -Volunteer for a project -Donate funds -Become an event sponsor -Share us on social media Our Mission Empowering Families & Educating Communities by promoting a day of awareness, hosting family gatherings, providing family support, & educational material. ​ Our Vision We aspire to be the largest recognized nonprofit organization helping Lissencephaly families worldwide ​ Our Values Integrity - being fair and sincere to the families we serve Teamwork - working as a team within the foundation but also the working with the members of our little community. Family focused- striving to provide education and support to the families we serve. Empowerment - providing a sense of security for all Lissencephaly families through education & supportWhat is Lissencephaly? ​ Lissencephaly is a rare neurological disorder that affects about 1 in 100,000 births. Most individuals will be cognitively and physically impaired. Each individual's progress will vary significantly, some children will remain closer to a 3-5 month mentality while others may have near typical functions.More InformarionWhat does the Lissencephaly Foundation do? ​ We are a 501c3 nonprofit organization working on empowering families & educating communities. We have established a few programs to help new and veteran families alike. Promoting a day of awareness through city and state proclamations & hosting events. We bring families together from all over the nation via family gatherings & conferences.ResourcesWE NEED YOUR HELP!Every dollar that we earn helps get us closer to our goal of Empowering Families & Educating Communities.Subscribe to our Site & receive monthly updatesFirst NameLast NameEmailI want to subscribe to your mailing list.SubmitThanks for submitting!

Low-Income/Economically Disadvantaged
Local (City/County Level)
Direct Service Delivery
Education & Awareness
Health
Mental Health & Substance Abuse
Disease-Specific Services

Annual Revenue

$15,761

Known Funders

4

Grants Received

6

Financial History

YearRevenueExpensesAssets
2024$15,761$18,208$17,392
2023$22,621$30,937$19,839
2022$23,045$24,842$28,155
2021$27,029$13,333$29,952
2020$17,225$7,652$16,256
2019$12,032$5,349$6,683

Top Funders

NETWORK FOR GOOD

WASHINGTON, DC

$11,988 (2021)
$11,900 (2024)
NETWORK FOR GOOD

WASHINGTON, DC

$6,737 (2023)
NETWORK FOR GOOD

WASHINGTON, DC

$6,707 (2022)
WSM FOUNDATION

ENCINO, CA

$2,500 (2022)
Unknown foundation
$536 (2023)

Key Personnel

From 2024 IRS 990 filing

M

MISTY HARLAN

VICE PRESIDENT

Officer
M

MYRIAM SERRANO

SECRETARY

Officer
M

MEGHAN VERRET

CONDOLENCES PACKAGE ARTIST

Officer
H

HILLARY MCNERNEY

PROCLAMATION COORDINATOR

K

KARA JONES

PRESIDENT AND CEO

Officer
M

MISTY HARLAN

VICE PRESIDENT

Officer
M

MYRIAM SERRANO

SECRETARY

Officer
M

MEGHAN VERRET

CONDOLENCES PACKAGE ARTIST

Officer
H

HILLARY MCNERNEY

PROCLAMATION COORDINATOR

Frequently Asked Questions

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