LISSENCEPHALY FOUNDATION INC
Data sourced from IRS 990 public filings
LISSENCEPHALY FOUNDATION INC SUPPORT OUR NONPROFITHow to help -Volunteer for a project -Donate funds -Become an event sponsor -Share us on social media Our Mission Empowering Families & Educating Communities by promoting a day of awareness, hosting family gatherings, providing family support, & educational material. Our Vision We aspire to be the largest recognized nonprofit organization helping Lissencephaly families worldwide Our Values Integrity - being fair and sincere to the families we serve Teamwork - working as a team within the foundation but also the working with the members of our little community. Family focused- striving to provide education and support to the families we serve. Empowerment - providing a sense of security for all Lissencephaly families through education & supportWhat is Lissencephaly? Lissencephaly is a rare neurological disorder that affects about 1 in 100,000 births. Most individuals will be cognitively and physically impaired. Each individual's progress will vary significantly, some children will remain closer to a 3-5 month mentality while others may have near typical functions.More InformarionWhat does the Lissencephaly Foundation do? We are a 501c3 nonprofit organization working on empowering families & educating communities. We have established a few programs to help new and veteran families alike. Promoting a day of awareness through city and state proclamations & hosting events. We bring families together from all over the nation via family gatherings & conferences.ResourcesWE NEED YOUR HELP!Every dollar that we earn helps get us closer to our goal of Empowering Families & Educating Communities.Subscribe to our Site & receive monthly updatesFirst NameLast NameEmailI want to subscribe to your mailing list.SubmitThanks for submitting!
Annual Revenue
$15,761
Known Funders
4
Grants Received
6
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $15,761 | $18,208 | $17,392 |
| 2023 | $22,621 | $30,937 | $19,839 |
| 2022 | $23,045 | $24,842 | $28,155 |
| 2021 | $27,029 | $13,333 | $29,952 |
| 2020 | $17,225 | $7,652 | $16,256 |
| 2019 | $12,032 | $5,349 | $6,683 |
Top Funders
WASHINGTON, DC
Potomac, MD
WASHINGTON, DC
WASHINGTON, DC
ENCINO, CA
Key Personnel
From 2024 IRS 990 filing
MISTY HARLAN
VICE PRESIDENT
MYRIAM SERRANO
SECRETARY
MEGHAN VERRET
CONDOLENCES PACKAGE ARTIST
HILLARY MCNERNEY
PROCLAMATION COORDINATOR
KARA JONES
PRESIDENT AND CEO
MISTY HARLAN
VICE PRESIDENT
MYRIAM SERRANO
SECRETARY
MEGHAN VERRET
CONDOLENCES PACKAGE ARTIST
HILLARY MCNERNEY
PROCLAMATION COORDINATOR
Frequently Asked Questions
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