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RARE VILLAGE FOUNDATION

MCKINNEY, TXEIN: 83-4699994Website

Data sourced from IRS 990 public filings

RARE VILLAGE FOUNDATION TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES

RARE VILLAGE FOUNDATION has received 48 grants from 37 known foundation funders. Revenue increased from $3,496,194 in 2024 to $3,660,787 in 2025. Most recent reported revenue: $3,660,787.

Annual Revenue

$3,660,787

Known Funders

37

Grants Received

48

Financial History

YearRevenueExpensesAssets
2025$3,660,787$2,368,236$3,322,255
2024$3,496,194$3,147,966$2,029,704
2023$2,626,190$2,147,205$1,681,476
2022$1,374,746$1,130,788$1,202,491
2021$2,314,057$1,389,893$958,533

Top Funders

$960,000 (2021)
RTW Foundation

New York, NY

$150,500 (2024)
$105,768 (2021)
$100,000 (2024)
NETWORK FOR GOOD

WASHINGTON, DC

$63,478 (2022)
$62,348 (2023)
$58,327 (2022)
$54,000 (2024)
$40,000 (2024)

Showing top 10 of 37 funders.

Key Personnel

From 2025 IRS 990 filing

A

AMBER FREED

DIRECTOR

Officer
A

AMY SOWELL

TREASURER DIRECTOR

Officer
K

KASEY WOLLEBEN

PRESIDENT DIRECTOR

Officer
G

GINA HANN

VICE PRESIDENT SECRETARY DIRECTOR

Officer

Frequently Asked Questions

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    RARE VILLAGE FOUNDATION (EIN: 83-4699994) - Funders & 990 Data | Signal990