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ASXL RARE RESEARCH ENDOWMENT FOUNDATION

Gorham, MEEIN: 82-3890665Website

Data sourced from IRS 990 public filings

ASXL RARE RESEARCH ENDOWMENT FOUNDATION A family-led organization that supports research to increase the understanding of the ASXL gene family and improve care for those living with ASXL Syndromes

Local (City/County Level)
Research & Evaluation
Medical Research
Health

Annual Revenue

$887,604

Known Funders

3

Grants Received

9

Financial History

YearRevenueExpensesAssets
2024$887,604$474,919$1,081,250
2023$283,786$229,386$668,547
2022$228,516$224,596$614,250
2021$286,093$284,960$616,097
2020$97,339$278,421$607,197
2019$896,818$122,037$788,279

Top Funders

$50,000 (2021)
$14,924 (2023)
$670 (2021)
$670 (2021)
$669 (2021)
$465 (2021)
$374 (2024)
$273 (2021)
$200 (2021)

Key Personnel

From 2024 IRS 990 filing

A

Amanda Scheirer

Director

S

Sankar Madhavan

Director

L

Lauren Adams

Director

J

Julie Lopez

Director

M

Michael Salad

Director

D

Daniel Ordower

Treasurer

L

Laura Badmaev

President

A

Amanda Johnson

Executive Director

Key EmployeeHighest Compensated

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