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THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY

MINNEAPOLIS, MNEIN: 82-3888108Website

Data sourced from IRS 990 public filings

THE YAYA FOUNDATION FOR 4H LEUKODYSTOPHY Founded and launched the 4H Leukodystrophy Collaboration Network (4HLCN), a global, cross-functional collaboration of patients, families, researchers, and clinicians dedicated to advancing therapeutic discovery that will enable people affected by 4H (POLR3-Related) Leukodystrophy to live longer, better lives.

National
Low-Income/Economically Disadvantaged
Disease-Specific Services
Direct Service Delivery
Education & Awareness
Health
Public Health & Disease Prevention
Research & Evaluation

Annual Revenue

$284,117

Known Funders

8

Grants Received

11

Financial History

YearRevenueExpensesAssets
2024$284,117$410,790$323,449
2023$210,490$524,912$441,329
2022$542,579$506,046$743,023
2021$402,928$401,596$708,156
2020$612,675$133,200$715,342

Top Funders

$25,000 (2021)
$18,000 (2021)
$15,000 (2023)
$15,000 (2022)
$15,000 (2021)
$10,000 (2023)
$10,000 (2023)
$8,700 (2023)
$5,000 (2024)

Key Personnel

From 2024 IRS 990 filing

S

SOLOMON LIEBERMAN

Director

T

TIM ARMOUR

Director

J

JIM ST JOHN

Director

D

DEBBIE TRIPTOW

Director

K

KURT TRIPTOW

Director

D

DR MARGO HUTCHINSON

Director

J

JUDE TALLMAN

Director

D

DR DANIEL GROSSMAN

Chairman

M

MARCIE FLORES

Director

C

CHRIS CLEARY

Director

Showing 10 of 14 key personnel.

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