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Coffin-Siris Syndrome Foundation

Kirkland, WAEIN: 82-2116961Website

Data sourced from IRS 990 public filings

Coffin-Siris Syndrome Foundation Our mission is to support, connect, and inform the Coffin-Siris Syndrome community, as well as promote and fund CSS-related research. Do you have a family member with a new diagnosis? We have assembled a few resources for families with a new diagnosis. Please complete this web form and we’ll be in touch. Most new families have a lot of […]

People with Disabilities
Local (City/County Level)
Direct Service Delivery
Education & Awareness
Disease-Specific Services
Health
Public Health & Disease Prevention

Annual Revenue

$206,026

Known Funders

4

Grants Received

5

Financial History

YearRevenueExpensesAssets
2024$206,026$119,026$206,160

Top Funders

$100,000 (2024)
NETWORK FOR GOOD

WASHINGTON, DC

$23,652 (2021)
NETWORK FOR GOOD

WASHINGTON, DC

$15,661 (2022)
GLOBAL GENES

WASHINGTON, DC

$5,100 (2023)
Unknown foundation
$1,865 (2023)

Key Personnel

From 2024 IRS 990 filing

K

Kristen McGraw

Board Member - Volunteer

Officer
G

Gaylen Mohre

Board Member - Volunteer

Officer
A

Amanda Cole

Board Member - Volunteer

Officer
B

Becky Dubay

Board Member - Volunteer

Officer
K

Katie Kneisel

Board Member - Volunteer

Officer
P

Parrish Burgess

Board Member - Volunteer

Officer
C

Carrissa Robinson

Chair

Officer
K

Kristen McGraw

Board Member - Volunteer

Officer
G

Gaylen Mohre

Board Member - Volunteer

Officer
A

Amanda Cole

Board Member - Volunteer

Officer

Showing 10 of 13 key personnel.

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