Coffin-Siris Syndrome Foundation
Data sourced from IRS 990 public filings
Coffin-Siris Syndrome Foundation Our mission is to support, connect, and inform the Coffin-Siris Syndrome community, as well as promote and fund CSS-related research. Do you have a family member with a new diagnosis? We have assembled a few resources for families with a new diagnosis. Please complete this web form and we’ll be in touch. Most new families have a lot of […]
Coffin-Siris Syndrome Foundation has received 5 grants from 4 known foundation funders. Revenue decreased from $206,026 in 2024 to $151,428 in 2025. Most recent reported revenue: $151,428.
Annual Revenue
$151,428
Known Funders
4
Grants Received
5
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $151,428 | $119,879 | $237,709 |
| 2024 | $206,026 | $119,026 | $206,160 |
Top Funders
MANHASSET, NY
WASHINGTON, DC
WASHINGTON, DC
WASHINGTON, DC
SEATTLE, WA
Key Personnel
From 2025 IRS 990 filing
Simon Gale
Operations - Secretary
Parrish Burgess
Conference
Katie Kneisel
New Diagnosis - Social Media
Becky Dubay
Community Development
Gaylen Mohre
Advocacy-Fundraising
Kristen McGraw
Treasurer
Carissa Robinson
Chair
Frequently Asked Questions
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