STXBP1 FOUNDATION TO CREATE AWARENESS IN THE DISORDERS ASSOCIATED WITH STXBP1 MUTATIONS. FUND AND DRIVE RESEARCH DISCOVERY OF A CURE. PROVIDE FAMILIES WITH TOOLS TO HELP THEM UNDERSTAND THE DISEASE & HOW TO GET INVOLVED. ADVOCATE TO IMPROVE EARLY DETECTION. FOSTER ACTIVISM TO HELP CHANGE POLICIES IN FAVOR OF ORPHANED DISEASES. IMPROVE THE LIVES OF OUR STXBP1 FAMILIES.
Annual Revenue
$1,420,429
Known Funders
12
Grants Received
14
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $1,420,429 | $1,268,147 | $1,487,440 |
| 2023 | $735,527 | $1,323,859 | $1,367,619 |
| 2022 | $1,830,890 | $509,216 | $1,701,392 |
| 2021 | $587,683 | $626,381 | $507,143 |
| 2020 | $296,852 | $12,494 | $318,455 |
Top Funders
Washington, DC
CHARLOTTESVILLE, VA
Midlothian, VA
Washington, DC
CHINO HILLS, CA
CHINO HILLS, CA
JENKINTOWN, PA
ALEXANDRIA, VA
NEW YORK, NY
Showing top 10 of 12 funders.
Key Personnel
From 2024 IRS 990 filing
DANIELE GREINER
DIRECTOR, DEVELOPMENT
JARED BARNUM
DIRECTOR, TECHNOLOGY
CRISTINA BRENNAN
SECRETARY
RUSS NOVY
DIRECTOR, MARKETING & BRAND
HEATHER JONES
TREASURER
JACQUELINE STEINBERG
VICE PRESIDENT & SCIENTIFI
MELISSA HIOCO
DIRECTOR, COMMUNITY ENGAGEMENT
CHARLENE SON RIGBY
PRESIDENT
Frequently Asked Questions
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