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STXBP1 FOUNDATION

HOLLY SPRINGS, NCEIN: 82-1439459Website

Data sourced from IRS 990 public filings

STXBP1 FOUNDATION TO CREATE AWARENESS IN THE DISORDERS ASSOCIATED WITH STXBP1 MUTATIONS. FUND AND DRIVE RESEARCH DISCOVERY OF A CURE. PROVIDE FAMILIES WITH TOOLS TO HELP THEM UNDERSTAND THE DISEASE & HOW TO GET INVOLVED. ADVOCATE TO IMPROVE EARLY DETECTION. FOSTER ACTIVISM TO HELP CHANGE POLICIES IN FAVOR OF ORPHANED DISEASES. IMPROVE THE LIVES OF OUR STXBP1 FAMILIES.

STXBP1 FOUNDATION has received 17 grants from 14 known foundation funders. Revenue increased from $735,527 in 2023 to $1,420,429 in 2024. Most recent reported revenue: $1,420,429.

Annual Revenue

$1,420,429

Known Funders

14

Grants Received

17

Financial History

YearRevenueExpensesAssets
2024$1,420,429$1,268,147$1,487,440
2023$735,527$1,323,859$1,367,619
2022$1,830,890$509,216$1,701,392
2021$587,683$626,381$507,143
2020$296,852$12,494$318,455

Top Funders

$106,467 (2021)
$100,000 (2024)
$25,000 (2025)
THE JAMES FAMILY CHARITABLE

CHARLOTTESVILLE, VA

$25,000 (2023)
Clara Inspired

Midlothian, VA

$23,850 (2023)
$16,127 (2023)
$10,000 (2023)
$10,000 (2024)
$10,000 (2022)

Showing top 10 of 14 funders.

Key Personnel

From 2024 IRS 990 filing

C

CHARLENE SON RIGBY

PRESIDENT

Officer
M

MELISSA HIOCO

DIRECTOR, COMMUNITY ENGAGEMENT

Officer
J

JACQUELINE STEINBERG

VICE PRESIDENT & SCIENTIFI

Officer
H

HEATHER JONES

TREASURER

Officer
R

RUSS NOVY

DIRECTOR, MARKETING & BRAND

Officer
C

CRISTINA BRENNAN

SECRETARY

Officer
J

JARED BARNUM

DIRECTOR, TECHNOLOGY

Officer
D

DANIELE GREINER

DIRECTOR, DEVELOPMENT

Officer

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    STXBP1 FOUNDATION (EIN: 82-1439459) - Funders & 990 Data | Signal990