VWM FAMILIES FOUNDATION INC
Data sourced from IRS 990 public filings
VWM FAMILIES FOUNDATION INC Vanishing White Matter disease VWM is a very rare neurological condition that destroys myelin the brains white matter In doing so it permanently affects transmission of brain signals to the rest of the body VWM primarily affects children and is untreatable incurable and terminal In 2016 the VWM Families Foundation was formed to raise awareness of VWM to raise money for research and to support families living with VWM within the United States and worldwide
VWM FAMILIES FOUNDATION INC has received 4 grants from 3 known foundation funders. Revenue increased from $55,074 in 2024 to $89,400 in 2025. Most recent reported revenue: $89,400.
Annual Revenue
$89,400
Known Funders
3
Grants Received
4
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $89,400 | $64,986 | $68,173 |
| 2024 | $55,074 | $185,742 | $43,366 |
Top Funders
Washington, DC
SEATTLE, WA
NEW YORK, NY
NEW YORK, NY
Key Personnel
From 2025 IRS 990 filing
Allyson Buck
Co-founder and President
Nicholas Buck
Co-founder and Operations
Brett Hollberg
Board Member Patient Advocacy
Donna Skwirut
Board Member Alliance Relations
Stefanie Rohring
Board Member
Frequently Asked Questions
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