VWM FAMILIES FOUNDATION INC
Data sourced from IRS 990 public filings
VWM FAMILIES FOUNDATION INC Vanishing White Matter disease VWM is a very rare neurological condition that destroys myelin the brains white matter In doing so it permanently affects transmission of brain signals to the rest of the body VWM primarily affects children and is untreatable incurable and terminal In 2016 the VWM Families Foundation was formed to raise awareness of VWM to raise money for research and to support families living with VWM within the United States and worldwide
Annual Revenue
$55,074
Known Funders
3
Grants Received
4
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $55,074 | $185,742 | $43,366 |
Top Funders
Washington, DC
NEW YORK, NY
NEW YORK, NY
Key Personnel
From 2024 IRS 990 filing
Allyson Buck
Co-founder President
Nicholas Buck
Co-founder Operations
Brett Hollberg
Board Member Patient Advocacy
Danuta Skwirut
Board Member
Stefanie Rohring
Board Member
Frequently Asked Questions
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