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CHILDREN'S CARDIOMYOPATHY

TENAFLY, NJEIN: 75-2986661Website

Data sourced from IRS 990 public filings

CHILDREN'S CARDIOMYOPATHY ONE CHILD out of 100,000 are diagnosed with symptoms. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Not every child is identified because they may be asymptomatic. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Cardiomyopathy can affect any child but varies in severity. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Two-thirds of diagnosed children do not have a known cause. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. A diagnosis of cardiomyopathy impacts the entire family. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Hope is in research to improve treatments. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Creating a future of hope in which cardiomyopathy is detected earlier, more lives are saved, and diagnosed children can live full and active lives. Support Our Holiday Appeal With your support, more families like Bennett’s can find the strength, resources, and hope they need. Hope begins with you. DONATE NOW Understand the Disease View CCF’s latest webinar Caring for Children with Cardiomyopathy featuring Steven E. Lipshultz, MD. Watch Here Advancing Research CCF funded a retreat for 17 leading U.S. investigators to advance multicenter research on childhood cardiomyopathy. READ MORE Meet Our Heart Kids Get to know the kids that inspire and motivate us every day. View stories. Latest News View webinar Caring for Children with Cardiomyopathy featuring Steven E. Lipshultz, MD. CCF-Funded study reveals genotype shaping severity in pediatric DCM CCF-Funded research identifies biomarkers guiding treatment in pediatric DCM CCF-funded research published in Nature CCF-funded study published in Circulation Empowering Families in their Journey Connect Join CCF to connect with family members and receive updates on research developments and new educational resources. Connect Online Learn Make use of available information and services created to support families in their journey with cardiomyopathy. Find Resources Support Find out about the best care by contacting CCF for guidance and access to a list of specialty centers and member resources. Contact CCF Recognizing Our Corporate Partners

National
Local (City/County Level)
Children (Ages 0-12)
Youth/Teens (Ages 13-18)
Medical Research
Research & Evaluation
Grantmaking & Regranting
Disease-Specific Services

Annual Revenue

$709,287

Known Funders

12

Grants Received

22

Financial History

YearRevenueExpensesAssets
2024$709,287$633,258$2,858,607
2023$735,543$554,816$2,617,005
2022$645,707$758,679$2,508,496
2021$890,184$841,007$2,994,643
2020$591,244$894,981$2,638,213
2019$938,052$928,206$2,522,439
2018$889,467$659,238$2,399,403
2017$805,873$794,244$2,418,137

Top Funders

$11,882 (2023)
$10,000 (2021)
$10,000 (2022)
PARKER FOUNDATION

JANESVILLE, WI

$9,000 (2021)
PARKER FOUNDATION

JANESVILLE, WI

$9,000 (2022)
PARKER FOUNDATION

JANESVILLE, WI

$9,000 (2023)
$5,500 (2022)
$5,500 (2022)
$5,500 (2021)
$5,400 (2021)

Showing top 10 of 12 funders.

Key Personnel

From 2024 IRS 990 filing

L

LISA YUE

PRESIDENT

Officer
W

WON CHOI

DIRECTOR

C

CARNEY HAWKS

TREASURER

Officer
C

CAROLYN KONG

DIRECTOR

B

BRAIN NOLD

DIRECTOR

E

EDDIE YU

DIRECTOR

R

RAYMOND YUE

SECRETARY

Officer

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