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CHILDREN'S CARDIOMYOPATHY

TENAFLY, NJEIN: 75-2986661Website

Data sourced from IRS 990 public filings

CHILDREN'S CARDIOMYOPATHY ONE CHILD out of 100,000 are diagnosed with symptoms. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Not every child is identified because they may be asymptomatic. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Cardiomyopathy can affect any child but varies in severity. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Two-thirds of diagnosed children do not have a known cause. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. A diagnosis of cardiomyopathy impacts the entire family. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Hope is in research to improve treatments. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Creating a future of hope in which cardiomyopathy is detected earlier, more lives are saved, and diagnosed children can live full and active lives. Support Our Holiday Appeal With your support, more families like Bennett’s can find the strength, resources, and hope they need. Hope begins with you. DONATE NOW Understand the Disease View CCF’s latest webinar Caring for Children with Cardiomyopathy featuring Steven E. Lipshultz, MD. Watch Here Advancing Research CCF funded a retreat for 17 leading U.S. investigators to advance multicenter research on childhood cardiomyopathy. READ MORE Meet Our Heart Kids Get to know the kids that inspire and motivate us every day. View stories. Latest News View webinar Caring for Children with Cardiomyopathy featuring Steven E. Lipshultz, MD. CCF-Funded study reveals genotype shaping severity in pediatric DCM CCF-Funded research identifies biomarkers guiding treatment in pediatric DCM CCF-funded research published in Nature CCF-funded study published in Circulation Empowering Families in their Journey Connect Join CCF to connect with family members and receive updates on research developments and new educational resources. Connect Online Learn Make use of available information and services created to support families in their journey with cardiomyopathy. Find Resources Support Find out about the best care by contacting CCF for guidance and access to a list of specialty centers and member resources. Contact CCF Recognizing Our Corporate Partners

CHILDREN'S CARDIOMYOPATHY has received 23 grants from 12 known foundation funders. Revenue increased from $709,287 in 2024 to $996,165 in 2025. Most recent reported revenue: $996,165.

Annual Revenue

$996,165

Known Funders

12

Grants Received

23

Financial History

YearRevenueExpensesAssets
2025$996,165$714,539$3,323,283
2024$709,287$633,258$2,858,607
2023$735,543$554,816$2,617,005
2022$645,707$758,679$2,508,496
2021$890,184$841,007$2,994,643
2020$591,244$894,981$2,638,213
2019$938,052$928,206$2,522,439
2018$889,467$659,238$2,399,403

Top Funders

$11,882 (2023)
$10,000 (2022)
$10,000 (2021)
PARKER FOUNDATION

JANESVILLE, WI

$9,000 (2021)
PARKER FOUNDATION

JANESVILLE, WI

$9,000 (2023)
PARKER FOUNDATION

JANESVILLE, WI

$9,000 (2022)
PARKER FOUNDATION

JANESVILLE, WI

$7,000 (2024)
$5,500 (2022)
$5,500 (2021)
$5,500 (2022)

Showing top 10 of 12 funders.

Key Personnel

From 2025 IRS 990 filing

R

RAYMOND YUE

SECRETARY

Officer
E

EDDIE YU

DIRECTOR

B

BRIAN NOLD MD

DIRECTOR

C

CAROLYN KONG

DIRECTOR

C

CARNEY HAWKS

TREASURER

Officer
W

WON CHOI

DIRECTOR

L

LISA YUE

PRESIDENT

Officer
K

KATHY SWENSON

EXECUTIVE DI

Key Employee

Frequently Asked Questions

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    CHILDREN'S CARDIOMYOPATHY (EIN: 75-2986661) - Funders & 990 Data | Signal990