CHILDREN'S CARDIOMYOPATHY
Data sourced from IRS 990 public filings
CHILDREN'S CARDIOMYOPATHY ONE CHILD out of 100,000 are diagnosed with symptoms. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Not every child is identified because they may be asymptomatic. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Cardiomyopathy can affect any child but varies in severity. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Two-thirds of diagnosed children do not have a known cause. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. A diagnosis of cardiomyopathy impacts the entire family. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Hope is in research to improve treatments. --- ----- --------- -----, ----- -- ---- ------ ------- ----------- ----- -- ---- -- --------- -----. Creating a future of hope in which cardiomyopathy is detected earlier, more lives are saved, and diagnosed children can live full and active lives. Support Our Holiday Appeal With your support, more families like Bennett’s can find the strength, resources, and hope they need. Hope begins with you. DONATE NOW Understand the Disease View CCF’s latest webinar Caring for Children with Cardiomyopathy featuring Steven E. Lipshultz, MD. Watch Here Advancing Research CCF funded a retreat for 17 leading U.S. investigators to advance multicenter research on childhood cardiomyopathy. READ MORE Meet Our Heart Kids Get to know the kids that inspire and motivate us every day. View stories. Latest News View webinar Caring for Children with Cardiomyopathy featuring Steven E. Lipshultz, MD. CCF-Funded study reveals genotype shaping severity in pediatric DCM CCF-Funded research identifies biomarkers guiding treatment in pediatric DCM CCF-funded research published in Nature CCF-funded study published in Circulation Empowering Families in their Journey Connect Join CCF to connect with family members and receive updates on research developments and new educational resources. Connect Online Learn Make use of available information and services created to support families in their journey with cardiomyopathy. Find Resources Support Find out about the best care by contacting CCF for guidance and access to a list of specialty centers and member resources. Contact CCF Recognizing Our Corporate Partners
Annual Revenue
$709,287
Known Funders
12
Grants Received
22
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $709,287 | $633,258 | $2,858,607 |
| 2023 | $735,543 | $554,816 | $2,617,005 |
| 2022 | $645,707 | $758,679 | $2,508,496 |
| 2021 | $890,184 | $841,007 | $2,994,643 |
| 2020 | $591,244 | $894,981 | $2,638,213 |
| 2019 | $938,052 | $928,206 | $2,522,439 |
| 2018 | $889,467 | $659,238 | $2,399,403 |
| 2017 | $805,873 | $794,244 | $2,418,137 |
Top Funders
Washington, DC
WALL, NJ
WALL, NJ
JANESVILLE, WI
JANESVILLE, WI
JANESVILLE, WI
SOUTHEASTERN, PA
JENKINTOWN, PA
SOUTHEASTERN, PA
JENKINTOWN, PA
Showing top 10 of 12 funders.
Key Personnel
From 2024 IRS 990 filing
LISA YUE
PRESIDENT
WON CHOI
DIRECTOR
CARNEY HAWKS
TREASURER
CAROLYN KONG
DIRECTOR
BRAIN NOLD
DIRECTOR
EDDIE YU
DIRECTOR
RAYMOND YUE
SECRETARY
Frequently Asked Questions
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