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Cure Sanfilippo Foundation

Columbia, SCEIN: 46-4322131Website

Data sourced from IRS 990 public filings

Cure Sanfilippo Foundation To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.

Cure Sanfilippo Foundation has received 79 grants from 50 known foundation funders. Revenue increased from $2,106,392 in 2023 to $2,781,149 in 2024. Most recent reported revenue: $2,781,149.

Annual Revenue

$2,781,149

Known Funders

50

Grants Received

79

Financial History

YearRevenueExpensesAssets
2024$2,781,149$1,572,959$13,871,255
2023$2,106,392$1,292,685$11,198,610
2022$2,707,445$2,287,097$9,625,770
2021$2,229,880$2,586,338$10,337,575
2020$2,083,251$3,140,290$10,163,332
2019$1,345,798$1,263,898$10,749,584
2018$2,058,979$1,153,410$10,817,840
2017$4,433,546$599,120$11,442,880

Top Funders

CAROLYN SMITH FOUNDATION

HENDERSONVILLE, TN

$200,000 (2024)
$198,993 (2023)
$161,495 (2022)
$101,000 (2021)
CAROLYN SMITH FOUNDATION

HENDERSONVILLE, TN

$100,000 (2023)
CAROLYN SMITH FOUNDATION

HENDERSONVILLE, TN

$100,000 (2022)
CAROLYN SMITH FOUNDATION

HENDERSONVILLE, TN

$50,000 (2021)
$34,000 (2025)
$30,000 (2025)
$27,934 (2022)

Showing top 10 of 50 funders.

Key Personnel

From 2024 IRS 990 filing

A

Adam Shaywitz

Director

B

Ben Von Wong

Director

M

Mike Lykes

Director

S

Shelby Leonardi

Secretary

Officer
F

Faith McAngus

Director

J

Jessica Haywood

Director

D

Daniel Fraley

Board Chair

Officer
K

Katie Walton

Vice President

Officer
C

Cara O'Neill

Chief Science

Officer
G

Glenn O'Neill

Exe Dir/Pres

Officer

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    Cure Sanfilippo Foundation (EIN: 46-4322131) - Funders & 990 Data | Signal990