Cure Sanfilippo Foundation
Data sourced from IRS 990 public filings
Cure Sanfilippo Foundation To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.
Annual Revenue
$2,781,149
Known Funders
45
Grants Received
74
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $2,781,149 | $1,572,959 | $13,871,255 |
| 2023 | $2,106,392 | $1,292,685 | $11,198,610 |
| 2022 | $2,707,445 | $2,287,097 | $9,625,770 |
| 2021 | $2,229,880 | $2,586,338 | $10,337,575 |
| 2020 | $2,083,251 | $3,140,290 | $10,163,332 |
| 2019 | $1,345,798 | $1,263,898 | $10,749,584 |
| 2018 | $2,058,979 | $1,153,410 | $10,817,840 |
| 2017 | $4,433,546 | $599,120 | $11,442,880 |
Top Funders
HENDERSONVILLE, TN
Washington, DC
Washington, DC
SOUTHEASTERN, PA
HENDERSONVILLE, TN
HENDERSONVILLE, TN
HENDERSONVILLE, TN
CHESTERFIELD, MO
PHILADELPHIA, PA
PHILADELPHIA, PA
Showing top 10 of 45 funders.
Key Personnel
From 2024 IRS 990 filing
Adam Shaywitz
Director
Ben Von Wong
Director
Mike Lykes
Director
Shelby Leonardi
Secretary
Faith McAngus
Director
Jessica Haywood
Director
Daniel Fraley
Board Chair
Katie Walton
Vice President
Cara O'Neill
Chief Science
Glenn O'Neill
Exe Dir/Pres
Frequently Asked Questions
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