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KOOLEN-DE VRIES SYNDROME FOUNDATION

WILMINGTON, NCEIN: 46-3208388Website

Data sourced from IRS 990 public filings

KOOLEN-DE VRIES SYNDROME FOUNDATION THE KOOLEN-DE VRIES SYNDROME FOUNDATION IS AN INTERNATIONAL GROUP THAT (CONTINUED ON SCHEDULE O) SUPPORTS, INFORMS, AND NETWORKS WITH ANYONE AFFECTED BY KOOLEN-DE VRIES SYNDROME (KDVS) AND WITH ANY INTERESTED PROFESSIONALS. THE FOUNDATION'S ACTIVITIES INCLUDE SOCIAL GATHERINGS, PATIENT ADVOCACY SUMMITS, SUPPORTING RESEARCH, AND PROVIDING INFORMATION REGARDING KDVS TO BOTH THE GENERAL POPULATION AND MEDICAL PROFESSIONALS.

People with Disabilities
National
Education & Awareness
Policy Advocacy & Legislative Reform
Disease-Specific Services
Medical Research
Health

Annual Revenue

$263,173

Known Funders

6

Grants Received

8

Financial History

YearRevenueExpensesAssets
2024$263,173$270,270$573,519
2023$305,621$324,564$580,616
2022$237,465$41,563$599,559
2021$257,578$144,163$403,657
2020$154,424$38,198$290,242
2019$213,930$161,746$156,237

Top Funders

$5,000 (2023)
BERTIN FAMILY FOUNDATION

NORTH SALT LAKE, UT

$5,000 (2024)
BERTIN FAMILY FOUNDATION

NORTH SALT LAKE, UT

$5,000 (2023)
Unknown foundation
$1,218 (2023)
$500 (2023)
$500 (2023)
$25 (2022)

Key Personnel

From 2024 IRS 990 filing

A

ALAYNA HAYNAM

BOARD MEMBER

A

ASHLEY POINT

PRESIDENT

Officer
C

CINDY ASBURY

BOARD MEMBER

E

EMILY LEMKE

BOARD MEMBER

G

GABRIEL STAGNER

TREASURER

Officer
J

JESSICA COLLIER

BOARD MEMBER

K

KACI FISHER

BOARD MEMBER

N

NEAL DERMERER

BOARD MEMBER

M

MARIA LUISA VALENTIN DE SOLIS

BOARD MEMBER

K

KATIE MAHER

BOARD MEMBER

Showing 10 of 12 key personnel.

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