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RARE TRAIT HOPE FUND

Belle Chasse, LAEIN: 46-2762646Website

Data sourced from IRS 990 public filings

RARE TRAIT HOPE FUND The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness of rare diseases in general and Aspartylglucosaminuria in particular.

Local (City/County Level)
Research & Evaluation
General Population
Medical Research
Health

Annual Revenue

$103,771

Known Funders

2

Grants Received

4

Financial History

YearRevenueExpensesAssets
2024$103,771$93,647$55,991
2022$260,648$627,071$174,245
2021$410,842$73,429$540,668

Top Funders

$142,254 (2021)
$33,054 (2022)
$6,857 (2023)
Unknown foundation
$50 (2023)

Key Personnel

From 2024 IRS 990 filing

J

Jody Taravella

Director

E

Erik Heywood

Director

G

Guzel Bilyalova

Secretary, Treasure

E

Emily Moran

Director

A

Alla Comardelle

Medical Director

J

Julia Taravella

President, Executive Director

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