Li Fraumeni Syndrome Association Inc
Data sourced from IRS 990 public filings
Li Fraumeni Syndrome Association Inc Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.
Li Fraumeni Syndrome Association Inc has received 7 grants from 4 known foundation funders. Revenue decreased from $604,521 in 2020 to $277,931 in 2024. Most recent reported revenue: $277,931.
Annual Revenue
$277,931
Known Funders
4
Grants Received
7
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $277,931 | $275,728 | $114,375 |
| 2020 | $604,521 | $180,483 | $451,882 |
| 2018 | $309,495 | $636,063 | $28,541 |
| 2017 | $206,087 | $369,367 | $355,109 |
| 2016 | $734,506 | $289,423 | $518,390 |
Top Funders
NEW YORK, NY
DENVER, CO
DENVER, CO
DENVER, CO
DENVER, CO
SEATTLE, WA
MINNEAPOLIS, MN
Key Personnel
From 2024 IRS 990 filing
Rob Lufkin
Med. Director
Deb Soprano
Dev. Director
Gina Vild
Comm.
Kathy Higgins
Educ. & Aware.
Sean Downing
Science
Jennifer Perry
President/Co- Founder
Holly Fraumeni
Vice President
Erica Kirschner
Secretary
Michele Giovenelli
Treasurer
Frequently Asked Questions
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