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Li Fraumeni Syndrome Association Inc

Holliston, MAEIN: 45-2284811Website

Data sourced from IRS 990 public filings

Li Fraumeni Syndrome Association Inc Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.

National
Low-Income/Economically Disadvantaged
Children (Ages 0-12)
Direct Service Delivery
Education & Awareness
Disease-Specific Services
Policy Advocacy & Legislative Reform
Health

Annual Revenue

$277,931

Known Funders

4

Grants Received

6

Financial History

YearRevenueExpensesAssets
2024$277,931$275,728$114,375
2020$604,521$180,483$451,882
2018$309,495$636,063$28,541
2017$206,087$369,367$355,109
2016$734,506$289,423$518,390

Top Funders

Unknown foundation
$406 (2023)
XCEL ENERGY FOUNDATION

MINNEAPOLIS, MN

$50 (2021)

Key Personnel

From 2024 IRS 990 filing

R

Rob Lufkin

Med. Director

D

Deb Soprano

Dev. Director

G

Gina Vild

Comm.

K

Kathy Higgins

Educ. & Aware.

S

Sean Downing

Science

J

Jennifer Perry

President/Co- Founder

Officer
H

Holly Fraumeni

Vice President

Officer
E

Erica Kirschner

Secretary

Officer
M

Michele Giovenelli

Treasurer

Officer

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