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GLUT1 Deficiency Foundation Inc

Owingsville, KYEIN: 45-2190535Website

Data sourced from IRS 990 public filings

Glut1 Deficiency Foundation Inc The Glut1 Deficiency Foundation is a parent-led patient advocacy organization dedicated to bringing help and hope to the Glut1 Deficiency community through increased awareness, improved education, advocacy for patients and families, and support and funding for research.

GLUT1 Deficiency Foundation Inc has received 24 grants from 15 known foundation funders. Revenue decreased from $514,707 in 2024 to $504,749 in 2025. Most recent reported revenue: $504,749.

Annual Revenue

$504,749

Known Funders

15

Grants Received

24

Financial History

YearRevenueExpensesAssets
2025$504,749$484,095$358,299
2024$514,707$608,978$365,826
2023$340,216$359,501$466,027
2022$776,976$611,811$447,949
2021$451,967$345,696$401,741
2020$357,668$285,999$489,814

Top Funders

$25,250 (2023)
$20,275 (2021)
$20,275 (2022)
$15,000 (2023)
Leroy and Helge Lamb Family

Rosemary Beach, FL

$9,000 (2024)
$6,180 (2024)
$6,000 (2023)
$6,000 (2022)
$5,147 (2023)

Showing top 10 of 15 funders.

Key Personnel

From 2025 IRS 990 filing

G

Glenna Steele

Executive Director

OfficerKey Employee
S

Sandra Ojeda

Science Director

Key Employee
R

Rob Rapaport

President

K

Kelly Jones

Vice President

D

Debbie Stoddard

Treasurer

E

Erin Meisner

Director

A

April Breen

Director

L

Leigh Hopkins

Secretary

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    GLUT1 Deficiency Foundation Inc (EIN: 45-2190535) - Funders & 990 Data | Signal990