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Glut1 Deficiency Foundation Inc

Owingsville, KYEIN: 45-2190535Website

Data sourced from IRS 990 public filings

Glut1 Deficiency Foundation Inc The Glut1 Deficiency Foundation is a parent-led patient advocacy organization dedicated to bringing help and hope to the Glut1 Deficiency community through increased awareness, improved education, advocacy for patients and families, and support and funding for research.

National
Local (City/County Level)
Youth/Teens (Ages 13-18)
Children (Ages 0-12)
Adults (Ages 26-64)
Low-Income/Economically Disadvantaged
Medical Research
Grantmaking & Regranting

Annual Revenue

$514,707

Known Funders

13

Grants Received

22

Financial History

YearRevenueExpensesAssets
2024$514,707$608,978$365,826
2023$340,216$359,501$466,027
2022$776,976$611,811$447,949
2021$451,967$345,696$401,741
2020$357,668$285,999$489,814

Top Funders

$25,250 (2023)
$20,275 (2022)
$20,275 (2021)
$15,000 (2023)
Leroy and Helge Lamb Family

Rosemary Beach, FL

$9,000 (2024)
$6,180 (2024)
$6,000 (2022)
$6,000 (2023)
$5,147 (2023)

Showing top 10 of 13 funders.

Key Personnel

From 2024 IRS 990 filing

L

Leigh Hopkins

Director

S

Sandra Ojeda

Science Director

Key Employee
M

Maria Rebbecchi

President

K

Kelly Jones

Vice President

R

Rob Rapaport

Secretary

D

Debbie Stoddard

Treasurer

E

Erin Meisner

Director

A

April Breen

Director

G

Glenna Steele

Executive Director

OfficerKey Employee
S

Sandra Ojeda

Science Director

Key Employee

Showing 10 of 17 key personnel.

Frequently Asked Questions

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