FABRY SUPPORT & INFORMATION GROUP
Data sourced from IRS 990 public filings
FABRY SUPPORT & INFORMATION GROUP Our mission is to provide information, advocacy, education, and compassionate support to improve the quality of life and care for those individuals suffering with Fabry.
Low-Income/Economically Disadvantaged
Local (City/County Level)
Direct Service Delivery
Education & Awareness
Disease-Specific Services
Health
Public Health & Disease Prevention
Annual Revenue
$645,226
Known Funders
5
Grants Received
7
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $645,226 | $608,196 | $758,617 |
| 2023 | $443,701 | $541,381 | $736,747 |
| 2022 | $680,471 | $504,845 | $804,958 |
| 2021 | $441,876 | $312,849 | $633,650 |
| 2020 | $362,522 | $273,230 | $455,948 |
| 2019 | $402,595 | $319,366 | $335,853 |
| 2018 | $372,034 | $314,589 | $231,854 |
| 2017 | $339,417 | $321,362 | $134,705 |
Top Funders
NATIONAL FABRY DISEASE FOUNDATION
HILLSBOROUGH, NC
$10,000 (2023)
HUFF FAMILY FOUNDATION
HOUSTON, TX
$5,000 (2022)
GE AEROSPACE FOUNDATION
NORWALK, CT
$1,035 (2021)
GE AEROSPACE FOUNDATION
NORWALK, CT
$250 (2023)
GE AEROSPACE FOUNDATION
NORWALK, CT
$250 (2024)
Unknown foundation
$196 (2023)
THE PFIZER FOUNDATION INC
NEW YORK, NY
$50 (2023)
Key Personnel
From 2024 IRS 990 filing
J
JACK JOHNSON
CHIEF EXECUTIVE OFFICER
Key Employee
A
AMY YOUNG
PRESIDENT
Officer
J
JASON FRETT
VICE PRESIDENT
Officer
D
DEBRA JOHNSON
SECRETARY/TREASURER
Officer
F
FREDDY BATTAH
BOARD MEMBER
M
MARK GELFOND
BOARD MEMBER
J
JEAN CAMPBELL
BOARD MEMBER
A
ANITA BRANDT BURGOYNE
BOARD MEMBER
Frequently Asked Questions
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