FAMILIES OF SPINAL MUSCULAR ATROPHY
Data sourced from IRS 990 public filings
FAMILIES OF SPINAL MUSCULAR ATROPHY TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.
FAMILIES OF SPINAL MUSCULAR ATROPHY has received 55 grants from 29 known foundation funders. Revenue increased from $14,785,235 in 2023 to $15,213,970 in 2024. Most recent reported revenue: $15,213,970.
Annual Revenue
$15,213,970
Known Funders
29
Grants Received
55
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $15,213,970 | $14,019,399 | $10,645,251 |
| 2023 | $14,785,235 | $15,621,865 | $10,703,968 |
| 2022 | $13,668,775 | $14,203,228 | $12,713,304 |
| 2021 | $15,022,219 | $14,183,277 | $11,297,459 |
| 2020 | $10,416,313 | $10,067,637 | $10,212,314 |
| 2019 | $12,083,530 | $11,119,996 | $10,151,974 |
| 2018 | $14,318,987 | $14,121,822 | $10,376,286 |
| 2017 | $11,464,375 | $9,693,450 | $8,151,278 |
Top Funders
SOUTHLAKE, TX
SOUTHLAKE, TX
WASHINGTON, DC
ALEXANDRIA, VA
Washington, DC
ALEXANDRIA, VA
WASHINGTON, DC
Showing top 10 of 29 funders.
Key Personnel
From 2024 IRS 990 filing
COLLEEN MCCARTHY O'TOOLE
SR VICE PRESIDENT, COMMUNI
JACKIE GLASCOCK
VICE PRESIDENT OF RESEARCH
MAYNARD FRIESZ
VICE PRESIDENT, POLICY
MARY CURRY
VICE PRESIDENT, CLINICAL RESEARCH & CARE
JESSE AYNES
VICE PRESIDENT OF DEVELOPMENT
MARLINE PAGAN
CHIEF OPERATING OFFICER
MARY SCHROTH
CHIEF MEDICAL OFFICER (THROUGH 3/31/25)
JAMIE GIBSON
CHIEF DEVELOPMENT OFFICER
KENNETH HOBBY
PRESIDENT
JOHN WEBER
DIRECTOR (START 10/1/2024)
Showing 10 of 36 key personnel.
Frequently Asked Questions
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