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FAMILIES OF SPINAL MUSCULAR ATROPHY

SCHAUMBURG, ILEIN: 36-3320440Website

Data sourced from IRS 990 public filings

FAMILIES OF SPINAL MUSCULAR ATROPHY TO DRIVE RESEARCH FOR TREATMENTS AND A CURE FOR SMA, AND TO SUPPORT AND EMPOWER EVERYONE IMPACTED BY SMA TODAY.

National
People with Disabilities
Medical Research
Research & Evaluation
Disease-Specific Services
Convening & Network Building
Health
Public Health & Disease Prevention

Annual Revenue

$15,213,970

Known Funders

29

Grants Received

55

Financial History

YearRevenueExpensesAssets
2024$15,213,970$14,019,399$10,645,251
2023$14,785,235$15,621,865$10,703,968
2022$13,668,775$14,203,228$12,713,304
2021$15,022,219$14,183,277$11,297,459
2020$10,416,313$10,067,637$10,212,314
2019$12,083,530$11,119,996$10,151,974
2018$14,318,987$14,121,822$10,376,286
2017$11,464,375$9,693,450$8,151,278

Top Funders

LUKE 181 FOUNDATION

SOUTHLAKE, TX

$450,181 (2023)
LUKE 181 FOUNDATION

SOUTHLAKE, TX

$375,000 (2021)
$30,000 (2021)
$29,757 (2023)
$28,396 (2023)
$27,633 (2022)
$25,000 (2023)

Showing top 10 of 29 funders.

Key Personnel

From 2024 IRS 990 filing

C

COLLEEN MCCARTHY O'TOOLE

SR VICE PRESIDENT, COMMUNI

Highest Compensated
J

JACKIE GLASCOCK

VICE PRESIDENT OF RESEARCH

Highest Compensated
M

MAYNARD FRIESZ

VICE PRESIDENT, POLICY

Highest Compensated
M

MARY CURRY

VICE PRESIDENT, CLINICAL RESEARCH & CARE

Highest Compensated
J

JESSE AYNES

VICE PRESIDENT OF DEVELOPMENT

Highest Compensated
M

MARLINE PAGAN

CHIEF OPERATING OFFICER

Key Employee
M

MARY SCHROTH

CHIEF MEDICAL OFFICER (THROUGH 3/31/25)

Key Employee
J

JAMIE GIBSON

CHIEF DEVELOPMENT OFFICER

Key Employee
K

KENNETH HOBBY

PRESIDENT

Officer
J

JOHN WEBER

DIRECTOR (START 10/1/2024)

Showing 10 of 36 key personnel.

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