UNITED LEUKODYSTROPHY FOUNDATION INC
Data sourced from IRS 990 public filings
UNITED LEUKODYSTROPHY FOUNDATION INC The United Leukodystrophy Foundation serves individuals and families affected by leukodystrophy by exchanging information and promoting progress on research, treatment and prevention.
Annual Revenue
$596,320
Known Funders
4
Grants Received
10
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $596,320 | $553,048 | $1,576,623 |
| 2023 | $730,096 | $656,324 | $1,525,484 |
| 2022 | $498,897 | $557,781 | $1,456,386 |
| 2021 | $662,662 | $437,190 | $1,641,493 |
| 2020 | $703,990 | $321,678 | $1,379,409 |
| 2019 | $434,192 | $434,313 | $939,092 |
| 2018 | $418,227 | $365,242 | $845,512 |
| 2017 | $489,566 | $466,756 | $883,575 |
Top Funders
NEW YORK, NY
NEW YORK, NY
NEW YORK, NY
NEW YORK, NY
NEW YORK, NY
NEW YORK, NY
NEW YORK, NY
NEW YORK, NY
NEW YORK, NY
Key Personnel
From 2024 IRS 990 filing
Diane Fennimore
Executive Director
Donna Skwirut
Treasurer
Shannon Reed
Secretary
Ron Chapleau
President
Mousumi Bose
Director
Amber Freed
Director
Gregory Huffer
Director
Dr Joseph Hacia
Director
Dr Stephanie Keller
Vice President
Marcie Flores
Director
Showing 10 of 14 key personnel.
Frequently Asked Questions
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