International Foundation For CDKL5 Research
Data sourced from IRS 990 public filings
International Foundation For CDKL5 Research To fund research aimed at finding a cure for CDKL5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from CDKL5.
Annual Revenue
$716,340
Known Funders
12
Grants Received
15
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $716,340 | $357,011 | $976,798 |
| 2023 | $639,182 | $414,598 | $761,142 |
| 2022 | $606,589 | $725,710 | $631,046 |
| 2021 | $678,047 | $487,865 | $544,139 |
| 2020 | $635,334 | $699,706 | $415,038 |
| 2019 | $462,544 | $720,098 | $329,464 |
| 2018 | $490,009 | $807,652 | $649,889 |
| 2017 | $327,200 | $260,632 | $913,861 |
Top Funders
MANSFIELD, OH
Washington, DC
MIDDLETOWN, CT
ALEXANDRIA, VA
HITCHCOCK, TX
NEW YORK, NY
NEW YORK, NY
NEW YORK, NY
NEW YORK, NY
Showing top 10 of 12 funders.
Key Personnel
From 2024 IRS 990 filing
Karen Utley
President
Rick Upp
Vice President
Paul Miller
Secretary
Amanda Jaksha
Treasurer
Miriam Churgin
Director
Garrett Decker
Director
Marissa Bishop
Director
Melissa Ralston
Board Member Emeritus
Frequently Asked Questions
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