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DRAVET SYNDROME FOUNDATION INC

Cherry Hill, NJEIN: 27-0924627Website

Data sourced from IRS 990 public filings

DRAVET SYNDROME FOUNDATION INC The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families.

General Population
National
Local (City/County Level)
Low-Income/Economically Disadvantaged
Medical Research
Grantmaking & Regranting
Disease-Specific Services
Education Policy & Reform

Annual Revenue

$4,221,622

Known Funders

35

Grants Received

41

Financial History

YearRevenueExpensesAssets
2024$4,221,622$4,259,172$8,536,916
2023$3,257,096$2,163,052$7,509,902
2022$2,515,782$2,028,839$6,249,148
2021$2,186,012$1,265,323$5,918,927
2020$1,964,117$921,735$4,882,989
2019$2,030,205$1,162,133$3,618,355
2010$338,407$226,344$121,679

Top Funders

$205,500 (2023)
$200,000 (2024)
$50,000 (2024)
$50,000 (2024)
$25,000 (2021)
$24,035 (2023)
$15,000 (2023)
$11,000 (2024)
$11,000 (2022)
$10,500 (2021)

Showing top 10 of 35 funders.

Key Personnel

From 2024 IRS 990 filing

V

Veronica Hood

Scientific Director

Highest Compensated
J

Jamie Cohen

Finance & Program Director

Officer
T

Ted Odlaug PhD

President

Officer
R

Ross Nicholas

Vice President

Officer
C

Claire Carey

Secretary

Officer
J

Josh Goldman

Treasurer

Officer
N

Nathan Batt

Trustee

A

Ashley Kerns

Trustee

J

Joseph Sullivan MD

Trustee

B

Bill Kirshner

Trustee

Showing 10 of 25 key personnel.

Frequently Asked Questions

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