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COALITION FOR USHER SYNDROME RESEARCH INCORPORATED

MAYNARD, MAEIN: 26-4560897Website

Data sourced from IRS 990 public filings

COALITION FOR USHER SYNDROME RESEARCH INCORPORATED To raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals with Usher syndrome.

People with Disabilities
Local (City/County Level)
Education & Awareness
Policy Advocacy & Legislative Reform
Disease-Specific Services
Health
Public Health & Disease Prevention

Annual Revenue

$103,895

Known Funders

3

Grants Received

3

Financial History

YearRevenueExpensesAssets
2023$250,204$284,874$240,348
2022$502,883$415,751$286,985
2020$236,754$172,747$199,232
2019$280,060$269,821$135,663
2018$199,273$182,902$125,293
2017$234,881$290,326$120,146
2016$278,702$244,596$164,922
2015$169,727$126,684$130,698

Top Funders

GLOBAL GENES

WASHINGTON, DC

$15,000 (2023)
PIPERS ANGELS FOUNDATION INC

North Palm Beach, FL

$5,000 (2022)
$100 (2021)

Key Personnel

From 2023 IRS 990 filing

K

Krista Vasi

Executive Director

Officer
L

Lanya McKittrick PhD

President

Officer
D

David Alexander

Director

D

Danay Trest

Director

K

Kathy Anamisis

Director

M

Margaret Kenna MD MPH

Director

M

Monte Westerfield PhD

Director

N

Nancy Corderman

Director

T

Tara Bowman

Secretary

Officer
J

Jennifer J Lentz PhD

Director

Showing 10 of 13 key personnel.

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