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Coalition For Usher Syndrome Research

Westford, MAEIN: 26-4560897Website

Data sourced from IRS 990 public filings

COALITION FOR USHER SYNDROME RESEARCH INCORPORATED To raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals with Usher syndrome.

Coalition For Usher Syndrome Research has received 3 grants from 3 known foundation funders. Revenue increased from $250,204 in 2023 to $378,430 in 2024. Most recent reported revenue: $378,430.

Annual Revenue

$378,430

Known Funders

3

Grants Received

3

Financial History

YearRevenueExpensesAssets
2024$378,430$436,862$188,331
2023$250,204$284,874$240,348
2022$502,883$415,751$286,985
2020$236,754$172,747$199,232
2019$280,060$269,821$135,663
2018$199,273$182,902$125,293
2017$234,881$290,326$120,146
2016$278,702$244,596$164,922

Top Funders

GLOBAL GENES

WASHINGTON, DC

$15,000 (2023)
PIPERS ANGELS FOUNDATION INC

North Palm Beach, FL

$5,000 (2022)
$100 (2021)

Key Personnel

From 2024 IRS 990 filing

E

Eric Wagner PhD

Director

S

Steven McCoy

Director

S

Steve Mason

Treasurer

Officer
J

Jennifer J Lentz PhD

Director

T

Tara Bowman

Secretary

Officer
N

Nancy Corderman

Director

M

Monte Westerfield PhD

Director

M

Margaret Kenna MD MPH

Director

K

Kathy Anamisis

Director

D

Danay Trest

Director

Showing 10 of 13 key personnel.

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    Coalition For Usher Syndrome Research (EIN: 26-4560897) - Funders & 990 Data | Signal990