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GLOBAL GENES

WASHINGTON, DCEIN: 26-3331487Website

Data sourced from IRS 990 public filings

GLOBAL GENES GLOBAL GENES STRIVES TO CONNECT, EMPOWER AND INSPIRE THE RARE DISEASE COMMUNITY.

National
Low-Income/Economically Disadvantaged
Education & Awareness
Direct Service Delivery
Disease-Specific Services
Health
Public Health & Disease Prevention
Education Policy & Reform

Annual Revenue

$7,145,531

Known Funders

10

Grants Received

12

Financial History

YearRevenueExpensesAssets
2024$7,145,531$7,415,893$1,538,482
2023$8,469,402$8,561,859$2,099,140
2022$5,557,435$7,700,189$2,294,462
2021$5,883,997$5,557,417$3,315,841
2020$5,567,077$5,166,425$3,087,118
2019$6,988,193$6,464,707$2,925,050
2018$4,930,932$4,476,426$1,746,498
2017$3,783,379$3,986,746$1,189,128

Top Funders

$280,000 (2021)
$225,000 (2021)
$165,000 (2023)
$100,000 (2022)
RTW Foundation

New York, NY

$15,000 (2023)
$10,000 (2023)
$10,000 (2021)
$5,934 (2021)
$3,000 (2021)
$2,000 (2022)

Key Personnel

From 2024 IRS 990 filing

T

TIMOTHY EHRHARD

SENIOR DIRECTOR, IT (TERM 12/24)

Highest Compensated
L

LAUREN ALFORD

SENIOR DIRECTOR, MARKETING

Highest Compensated
Z

ZOHREH TALEBIZADEH

SENIOR DIRECTOR, RARE-X RESEARCH PROGRAM

Highest Compensated
K

KARMEN TRZUPEK

SENIOR DIRECTOR, SCIENTIFIC PROGRAMS

Highest Compensated
V

VICTORIA WEISS

SENIOR DIRECTOR, FINANCE

Officer
C

CHARLENE SON RIGBY

CEO

Officer
K

KELLY MCVEARRY

DIRECTOR

A

ALVIN SHIH

DIRECTOR

M

MORRIE RUFFIN

DIRECTOR

J

JOHN REYNDERS

DIRECTOR

Showing 10 of 26 key personnel.

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