LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC
Data sourced from IRS 990 public filings
LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC WORLDWIDE PATIENT SUPPORT PROGRAM WHICH INCLUDES A PATIENT REGISTRY, A WEBSITE WITH RARE DISEASE INFORMATION AND PATIENT DISCUSSION FORUM.
National
Low-Income/Economically Disadvantaged
Direct Service Delivery
Education & Awareness
Medical Research
Research & Evaluation
Health
Disease-Specific Services
Annual Revenue
$118,890
Known Funders
2
Grants Received
2
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $118,890 | $153,100 | $353,825 |
| 2023 | $271,042 | $310,725 | $386,253 |
| 2021 | $321,718 | $319,777 | $579,142 |
| 2020 | $323,008 | $211,390 | $662,607 |
| 2019 | $320,054 | $106,049 | $552,913 |
Top Funders
THE FOUNDATION FOR ENHANCING COMMUNITIES
HARRISBURG, PA
$95,000 (2023)
GLOBAL GENES
WASHINGTON, DC
$15,000 (2023)
Key Personnel
From 2024 IRS 990 filing
O
OFELIA RODRIGUEZ NIEVAS
BOARD MEMBER
S
SAMIRA FAROUNI
BOARD MEMBER
K
KEVIN MARTIN
BOARD MEMBER
L
LOUISE MURGIA
DIRECTOR OF OPERATIONS
M
MICHAEL KELLY
EXECUTIVE DIRECTOR
S
SCOTT WEISNER
PRESIDENT
S
SCOTT GOLDFARB
TREASURER
T
TIFFANY FERRY
BOARD MEMBER
M
MITCH MAERSCH
BOARD MEMBER
S
SEAN CHASTAIN
BOARD MEMBER
Frequently Asked Questions
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