Skip to main content

RETT SYNDROME RESEARCH TRUST INC

TRUMBULL, CTEIN: 26-0687439Website

Data sourced from IRS 990 public filings

RETT SYNDROME RESEARCH TRUST INC THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.

RETT SYNDROME RESEARCH TRUST INC has received 301 grants from 150 known foundation funders. Revenue decreased from $9,307,309 in 2024 to $8,678,380 in 2025. Most recent reported revenue: $8,678,380.

Annual Revenue

$8,678,380

Known Funders

150

Grants Received

301

Financial History

YearRevenueExpensesAssets
2025$8,678,380$8,239,349$20,833,981
2024$9,307,309$11,731,465$20,356,580
2023$8,523,815$12,338,304$18,457,084
2022$7,097,993$4,042,165$14,883,080
2021$8,124,811$4,739,121$13,582,017
2020$14,024,428$3,066,720$11,977,275
2019$8,515,113$10,665,107$9,801,315
2018$9,664,180$11,377,192$11,319,755

Top Funders

$1,100,000 (2021)
$750,000 (2023)
$400,000 (2024)
$236,000 (2021)
$200,000 (2023)
THE RANDALL FAMILY FOUNDATION

WESTLAKE VILLAGE, CA

$110,000 (2022)
$100,000 (2023)
GIRL POWER 2 CURE

FERNANDINA BEACH, FL

$60,000 (2021)
GIRL POWER 2 CURE

FERNANDINA BEACH, FL

$60,000 (2021)
THE BLACKBAUD GIVING FUND

CHARLESTON SC, SC

$58,705 (2021)

Showing top 10 of 150 funders.

Key Personnel

From 2025 IRS 990 filing

T

TIMOTHY J FREEMAN

CHIEF DEVELOPMENT OFFICER

Key Employee
R

ROBERT DEANS

CHIEF TECHNOLOGY OFFICER

Key Employee
J

JANA SE VON HEHN

CHIEF SCIENTIFIC OFFICER

Key Employee
A

ANTHONY P SCHOENER

CHAIRMAN

Officer
S

STEPHANIE BOHN

TRUSTEE

R

RACHEL ROTHSCHILD

TRUSTEE

R

RACHAEL STEVENSON

TRUSTEE

M

MONICA COENRAADS

CHIEF EXECUTIVE OFFICER

Officer
M

MARCI VALNER

TREASURER

Officer
L

LAWRENCE MATTIS

SECRETARY

Officer

Showing 10 of 17 key personnel.

Frequently Asked Questions

Other Nonprofits in Connecticut

Yale University$6,841,256,079
KNIGHTS OF COLUMBUS$2,757,321,043
Hartford Hospital$2,659,329,640
All nonprofits in Connecticut

Unlock Full Nonprofit Data

Sign up for free to access the complete funder list, financial history, program details, key personnel, and smart matching.

Unlock full data & AI matching Sign up free

    RETT SYNDROME RESEARCH TRUST INC (EIN: 26-0687439) - Funders & 990 Data | Signal990