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RETT SYNDROME RESEARCH TRUST INC

TRUMBULL, CTEIN: 26-0687439Website

Data sourced from IRS 990 public filings

RETT SYNDROME RESEARCH TRUST INC THE ORGANIZATION'S MISSION IS FOCUSED ON THE DEVELOPMENT OF TREATMENTS AND CURES FOR RETT SYNDROME AND RELATED MECP2 DISORDERS.

People with Disabilities
Local (City/County Level)
National
Grantmaking & Regranting
Research & Evaluation
Medical Research
Disease-Specific Services
Health

Annual Revenue

$9,307,309

Known Funders

149

Grants Received

285

Financial History

YearRevenueExpensesAssets
2024$9,307,309$11,731,465$20,356,580
2023$8,523,815$12,338,304$18,457,084
2022$7,097,993$4,042,165$14,883,080
2021$8,124,811$4,739,121$13,582,017
2020$14,024,428$3,066,720$11,977,275
2019$8,515,113$10,665,107$9,801,315
2018$9,664,180$11,377,192$11,319,755
2017$12,528,990$7,443,444$11,844,163

Top Funders

$1,100,000 (2021)
$750,000 (2023)
$400,000 (2024)
$236,000 (2021)
$200,000 (2023)
THE RANDALL FAMILY FOUNDATION

WESTLAKE VILLAGE, CA

$110,000 (2022)
$100,000 (2023)
GIRL POWER 2 CURE

FERNANDINA BEACH, FL

$60,000 (2021)
GIRL POWER 2 CURE

FERNANDINA BEACH, FL

$60,000 (2021)
THE BLACKBAUD GIVING FUND

CHARLESTON SC, SC

$58,705 (2021)

Showing top 10 of 149 funders.

Key Personnel

From 2024 IRS 990 filing

J

JANA SE VON HEHN

CHIEF SCIENTIFIC OFFICER

Key Employee
T

TIMOTHY J FREEMAN

CHIEF DEVELOPMENT OFFICER

Key Employee
R

ROBERT DEANS

CHIEF TECHNOLOGY OFFICER

Key Employee
S

STEPHANIE BOHN

TRUSTEE

R

RACHEL ROTHSCHILD

TRUSTEE

R

RACHAEL STEVENSON

TRUSTEE

M

MONICA COENRAADS

CHIEF EXECUTIVE OFFICER

Officer
M

MARCI VALNER

TREASURER

Officer
A

AMY GILLIAND

TRUSTEE

L

LAWRENCE MATTIS

SECRETARY

Officer

Showing 10 of 16 key personnel.

Frequently Asked Questions

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