Skip to main content

HEREDITARY DISEASE FOUNDATION

NEW YORK, NYEIN: 23-7376197Website

Data sourced from IRS 990 public filings

HEREDITARY DISEASE FOUNDATION TO FUND TRANSFORMATIVE RESEARCH TO FIND TREATMENTS, AND ULTIMATELY A CURE, FOR HUNTINGTON'S DISEASE.

People with Disabilities
National
Local (City/County Level)
Grantmaking & Regranting
Medical Research
Convening & Network Building
Disease-Specific Services
Research & Evaluation

Annual Revenue

$7,899,221

Known Funders

30

Grants Received

65

Financial History

YearRevenueExpensesAssets
2024$7,899,221$4,524,145$21,978,294
2023$2,578,841$4,738,635$18,234,308
2022$4,522,686$2,603,305$16,776,193
2021$3,846,649$2,967,624$18,145,612
2020$4,059,819$2,519,661$15,507,063
2019$2,027,985$2,301,831$12,457,716
2018$2,691,357$2,137,659$10,922,906
2017$1,074,269$2,547,618$11,878,583

Top Funders

$250,000 (2023)
$250,000 (2021)
$250,000 (2024)
$132,100 (2024)
$100,000 (2022)
$90,000 (2023)
$90,000 (2023)
$77,500 (2022)
$75,000 (2022)
$75,000 (2021)

Showing top 10 of 30 funders.

Key Personnel

From 2024 IRS 990 filing

E

ERICA MATISZ

DIR. OF DEVELOPMENT

Highest Compensated
J

JULIE PORTER

DIR. OF ADMINISTRATION

Highest Compensated
S

SARAH HERNANDEZ

DIR. OF RESEARCH PROGRAMS

Highest Compensated
L

LAUREN BAKER PINKUS

DIRECTOR

L

LESLIE M THOMPSON PHD

DIRECTOR

D

DAVID ZWALLY

DIRECTOR

M

MEGHAN DONALDSON

CEO

Officer
K

KAREN NEWMAN

CHAIR

Officer
N

NANCY S WEXLER PHD

PRESIDENT

Officer
A

ANNE B YOUNG MD PHD

VICE CHAIR

Officer

Showing 10 of 23 key personnel.

Frequently Asked Questions

Other Nonprofits in New York

All nonprofits in New York

Unlock Full Nonprofit Data

Sign up for free to access the complete funder list, financial history, program details, key personnel, and smart matching.

Unlock full data & AI matching Sign up free