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CHARCOT-MARIE-TOOTH ASSOCIATION

GLENOLDEN, PAEIN: 22-2480896Website

Data sourced from IRS 990 public filings

CHARCOT-MARIE-TOOTH ASSOCIATION TO SUPPORT THE DEVELOPMENT OF NEW DRUGS TO TREAT CHARCOT-MARIE-TOOTH DISEASE (CMT), TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH CMT AND UNTIMATELY, TO FUND A CURE.

People with Disabilities
National
Local (City/County Level)
Medical Research
Grantmaking & Regranting
Disease-Specific Services
Health
Convening & Network Building

Annual Revenue

$5,778,743

Known Funders

63

Grants Received

117

Financial History

YearRevenueExpensesAssets
2024$5,778,743$5,791,669$9,548,719
2023$5,761,508$6,291,966$9,566,018
2022$10,398,940$6,545,390$9,861,023
2021$5,168,679$4,839,059$6,028,701
2020$5,232,342$3,903,750$5,686,656
2019$4,754,217$4,066,749$4,348,541
2018$4,984,863$3,150,332$3,645,409
2017$3,138,829$2,539,687$1,835,763

Top Funders

$114,000 (2021)
NETWORK FOR GOOD

WASHINGTON, DC

$69,022 (2021)
$53,000 (2023)
$50,000 (2023)
$42,500 (2021)
$32,000 (2023)
$30,000 (2023)
$25,000 (2022)

Showing top 10 of 63 funders.

Key Personnel

From 2024 IRS 990 filing

L

LAUREL RICHARDSON

DIRECTOR OF COMMUNITY OUTREACH

Highest Compensated
K

KATHERINE FORSEY

CHIEF RESEARCH OFFICER

Highest Compensated
J

JEANA SWEENEY

CHIEF ENGAGEMENT AND GIFT OFFICER

Highest Compensated
K

KIMBERLY MAGEE

DIRECOT OF FINANCE AND ADMIN

Officer
D

DAVID NORCOM

BOARD MEMBER (THRU 9/24)

S

STEVEN O'DONNELL

BOARD MEMBER (THRU 12/24)

W

WENDY ARNONE

BOARD MEMBER (EFF 3/24)

S

SUZANNE BRUHN

CHIEF EXECUTIVE OFFICER

Officer
P

PHYLLIS SANDERS

BOARD MEMBER (THRU 2/24)

P

PARTRICIA VERDUIN OHD

BOARD MEMBER (EFF 4/24)

Showing 10 of 26 key personnel.

Frequently Asked Questions

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