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MYOTONIC DYSTROPHY FOUNDATION INC

OAKLAND, CAEIN: 20-5014628Website

Data sourced from IRS 990 public filings

MYOTONIC DYSTROPHY FOUNDATION INC To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.

People with Disabilities
Local (City/County Level)
National
Low-Income/Economically Disadvantaged
Disease-Specific Services
Education & Awareness
Research & Evaluation
Medical Research

Annual Revenue

$3,659,795

Known Funders

54

Grants Received

92

Financial History

YearRevenueExpensesAssets
2024$3,659,795$3,754,033$5,826,049
2023$2,448,480$3,791,128$5,467,413
2022$2,774,035$2,506,145$6,830,491
2021$2,383,618$1,490,525$5,846,076
2020$1,947,806$1,124,779$4,489,179
2019$2,271,866$2,248,284$3,955,407
2018$2,183,628$2,021,676$3,794,207
2017$3,237,856$1,998,957$3,288,895

Top Funders

NETWORK FOR GOOD

WASHINGTON, DC

$267,093 (2023)
NETWORK FOR GOOD

WASHINGTON, DC

$224,031 (2022)
NETWORK FOR GOOD

WASHINGTON, DC

$191,940 (2021)
$57,500 (2022)
$50,000 (2023)
$35,000 (2022)
$35,000 (2024)
$35,000 (2023)
$30,000 (2022)
$30,000 (2023)

Showing top 10 of 54 funders.

Key Personnel

From 2024 IRS 990 filing

T

TANYA STEVENSON

CEO

Officer
A

ANDREAS ROHRWASSER

CHIEF SCI. OFFICER

K

KLEED CUMMING

COMM/TECH MANAGER

M

MINDY BUCHANAN

DIR. OF PROGRAMS

J

JEREMY KELLY

CHAIR

Officer
M

MARTHA MONTAG BROWN

VICE-CHAIR

Officer
E

ELIZABETH FLORENCE

Secretary

Officer
D

DAVID HERBERT

Treasurer

Officer
D

DAVID BERMAN

Director

J

JOHN W DAY

Director

Showing 10 of 16 key personnel.

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