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TYLER'S HOPE FOR DYSTONIA CURE INC

ALACHUA, FLEIN: 20-3733312Website

Data sourced from IRS 990 public filings

TYLER'S HOPE FOR DYSTONIA CURE INC HELP FIND A CURE! OUR STORY DONATE NOW Our Mission About Tyler’s Hope for a Dystonia Cure Founded in 2006, Tyler’s Hope for a Dystonia Cure is dedicated to raising awareness, advancing research, and accelerating the discovery of finding a cure for DYT1 dystonia. Dystonia is a neurological movement disorder that causes involuntary muscle contractions, forcing parts of the body into abnormal, often painful, movements and postures. It can affect any area, including the arms, legs, trunk, neck, eyelids, face, or vocal cords. While dystonia does not impact cognitive function, strength, or sensory perception, it can impair speech and significantly affect quality of life. Though not fatal, it is a chronic condition with an unpredictable prognosis. Dystonia is the third most common movement disorder, following Parkinson’s disease and essential tremor. It affects people of all ages, races, and ethnic backgrounds—one-third of those diagnosed are children. In fact, dystonia impacts more individuals than Muscular Dystrophy, Huntington’s Disease, and Lou Gehrig’s Disease combined. Tyler’s Hope is committed to ensuring that no other child endures the same challenges that Tyler and Samantha faced on their journey to a diagnosis. Through advocacy, education, and research, we strive to bring hope and a cure within reach.

People with Disabilities
National
Local (City/County Level)
Low-Income/Economically Disadvantaged
Grantmaking & Regranting
Education & Awareness
Medical Research
Research & Evaluation

Annual Revenue

$746,640

Known Funders

14

Grants Received

17

Financial History

YearRevenueExpensesAssets
2024$746,640$640,863$446,360
2023$437,587$463,888$335,007
2022$376,541$504,125$359,448
2021$485,740$365,889$489,534
2020$252,969$231,023$369,685
2019$316,005$385,014$335,976
2018$333,212$413,603$361,260
2017$435,710$526,636$451,302

Top Funders

NETWORK FOR GOOD

WASHINGTON, DC

$13,861 (2021)
$10,000 (2021)
$10,000 (2024)
$9,843 (2022)
$5,600 (2021)
$5,500 (2021)
$5,300 (2023)
$5,000 (2021)
BELZ FOUNDATION

MEMPHIS, TN

$2,500 (2022)

Showing top 10 of 14 funders.

Key Personnel

From 2024 IRS 990 filing

H

HEATHER PARKER

DIRECTOR

M

MIKE MITROOK

DIRECTOR

D

DAURINE WEHBE

DIRECTOR

P

PETE SEAGROVES

DIRECTOR

B

BUSH DWAINE

DIRECTOR

S

STEPHEN TANNER

DIRECTOR

M

MICHELE STREITMATTER

DIRECTOR

R

RICHARD A STAAB

PRESIDENT

Officer
M

MICHELLE STAAB

TREASURER

Officer
B

BRIAN SCARBOROUGH

VP COMM AFFAIRS

Officer

Showing 10 of 20 key personnel.

Frequently Asked Questions

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