TYLER'S HOPE FOR DYSTONIA CURE INC
Data sourced from IRS 990 public filings
TYLER'S HOPE FOR DYSTONIA CURE INC HELP FIND A CURE! OUR STORY DONATE NOW Our Mission About Tyler’s Hope for a Dystonia Cure Founded in 2006, Tyler’s Hope for a Dystonia Cure is dedicated to raising awareness, advancing research, and accelerating the discovery of finding a cure for DYT1 dystonia. Dystonia is a neurological movement disorder that causes involuntary muscle contractions, forcing parts of the body into abnormal, often painful, movements and postures. It can affect any area, including the arms, legs, trunk, neck, eyelids, face, or vocal cords. While dystonia does not impact cognitive function, strength, or sensory perception, it can impair speech and significantly affect quality of life. Though not fatal, it is a chronic condition with an unpredictable prognosis. Dystonia is the third most common movement disorder, following Parkinson’s disease and essential tremor. It affects people of all ages, races, and ethnic backgrounds—one-third of those diagnosed are children. In fact, dystonia impacts more individuals than Muscular Dystrophy, Huntington’s Disease, and Lou Gehrig’s Disease combined. Tyler’s Hope is committed to ensuring that no other child endures the same challenges that Tyler and Samantha faced on their journey to a diagnosis. Through advocacy, education, and research, we strive to bring hope and a cure within reach.
Annual Revenue
$746,640
Known Funders
14
Grants Received
17
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $746,640 | $640,863 | $446,360 |
| 2023 | $437,587 | $463,888 | $335,007 |
| 2022 | $376,541 | $504,125 | $359,448 |
| 2021 | $485,740 | $365,889 | $489,534 |
| 2020 | $252,969 | $231,023 | $369,685 |
| 2019 | $316,005 | $385,014 | $335,976 |
| 2018 | $333,212 | $413,603 | $361,260 |
| 2017 | $435,710 | $526,636 | $451,302 |
Top Funders
WASHINGTON, DC
NASHVILLE, TN
GAINESVILLE, FL
NASHVILLE, TN
Gainesville, FL
HUDSON, OH
JONESVILLE, FL
HUDSON, OH
GAINESVILLE, FL
MEMPHIS, TN
Showing top 10 of 14 funders.
Key Personnel
From 2024 IRS 990 filing
HEATHER PARKER
DIRECTOR
MIKE MITROOK
DIRECTOR
DAURINE WEHBE
DIRECTOR
PETE SEAGROVES
DIRECTOR
BUSH DWAINE
DIRECTOR
STEPHEN TANNER
DIRECTOR
MICHELE STREITMATTER
DIRECTOR
RICHARD A STAAB
PRESIDENT
MICHELLE STAAB
TREASURER
BRIAN SCARBOROUGH
VP COMM AFFAIRS
Showing 10 of 20 key personnel.
Frequently Asked Questions
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