Moebius Syndrome Foundation
Data sourced from IRS 990 public filings
Moebius Syndrome Foundation To provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions
Annual Revenue
$338,157
Known Funders
4
Grants Received
6
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2024 | $338,157 | $283,083 | $1,978,268 |
| 2023 | $458,300 | $599,259 | $1,833,572 |
| 2022 | $358,125 | $519,527 | $1,898,826 |
| 2021 | $1,037,936 | $183,742 | $2,393,833 |
| 2020 | $104,435 | $600,241 | $1,589,005 |
| 2019 | $232,434 | $321,314 | $1,824,347 |
| 2018 | $331,391 | $414,749 | $1,775,916 |
| 2017 | $275,289 | $277,772 | $1,958,564 |
Top Funders
WASHINGTON, DC
WASHINGTON, DC
WASHINGTON, DC
KETCHUM, ID
Fort Collins, CO
Key Personnel
From 2024 IRS 990 filing
Jennifer Whitman
Executive Director
Jacob Licht
Past President
Steven Maldonado
Vice President
Jon Fisher
Secretary
Destiny Bachman
Treasurer
Rebecca Maher
President
Bryn Webb MD
Board Member
Kathryn Kraus
Board Member
KiOwana Phillips
Board Member
Vicky McCarrell
Board Member
Showing 10 of 11 key personnel.
Frequently Asked Questions
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