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CORNELIA DE LANGE SYNDROME FOUNDATION

AVON, CTEIN: 06-1057497Website

Data sourced from IRS 990 public filings

CORNELIA DE LANGE SYNDROME FOUNDATION Family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

Local (City/County Level)
National
People with Disabilities
Direct Service Delivery
Children (Ages 0-12)
Education & Awareness
Disease-Specific Services
Health

Annual Revenue

$1,085,462

Known Funders

16

Grants Received

29

Financial History

YearRevenueExpensesAssets
2024$1,085,462$1,114,037$3,356,963
2023$945,606$993,059$3,267,499
2022$1,084,533$1,077,537$2,928,508
2021$1,245,385$921,430$3,378,142
2020$1,004,423$932,863$2,826,787
2019$2,289,148$954,784$2,448,230
2018$1,031,258$1,187,690$999,632
2017$962,849$954,105$1,225,708

Top Funders

$26,500 (2021)
$15,250 (2023)
AMG CHARITABLE GIFT FOUNDATION

GREENWOOD VILLAGE, CO

$15,000 (2023)
$12,624 (2022)
$11,000 (2023)
$10,550 (2021)
$10,250 (2022)
$10,000 (2021)

Showing top 10 of 16 funders.

Key Personnel

From 2024 IRS 990 filing

T

Tricia Wise

Director

M

Mary Ann Ehlert

Director

P

Paul Villani

President

Officer
Y

Yvonne Alston

Director

N

Nicholas Jackson

Secretary

Officer
S

Steve Snodsmith

Director

E

Eric Johnson

Treasurer

Officer
A

Arthur Lander

Director

R

Rob Rodriguez

Director

M

Mike Feehan

Vice President

Officer

Showing 10 of 12 key personnel.

Frequently Asked Questions

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