PHELAN MCDERMID SYNDROME FOUNDATION
Data sourced from IRS 990 public filings
PHELAN MCDERMID SYNDROME FOUNDATION The mission of the Phelan-McDermid Syndrome Foundation is to make today better and the future brighter for everyone living with Phelan-McDermid syndrome - from the moment of diagnosis to the delivery of treatments and cures.
PHELAN MCDERMID SYNDROME FOUNDATION has received 45 grants from 30 known foundation funders. Revenue decreased from $1,306,884 in 2024 to $1,245,861 in 2025. Most recent reported revenue: $1,245,861.
Annual Revenue
$1,245,861
Known Funders
30
Grants Received
45
Financial History
| Year | Revenue | Expenses | Assets |
|---|---|---|---|
| 2025 | $1,245,861 | $1,082,374 | $2,220,653 |
| 2024 | $1,306,884 | $1,437,564 | $2,109,869 |
| 2023 | $1,062,761 | $1,098,819 | $2,243,009 |
| 2022 | $853,648 | $715,263 | $2,113,920 |
| 2021 | $897,002 | $497,424 | $1,940,384 |
| 2020 | $560,200 | $455,390 | $1,639,670 |
| 2019 | $656,384 | $578,555 | $1,427,059 |
| 2018 | $1,199,078 | $899,420 | $1,423,117 |
Top Funders
MELBOURNE, FL
SARASOTA, FL
SARASOTA, FL
Washington, DC
ALPHARETTA, GA
Riverside, CA
NEW YORK, NY
WASHINGTON, DC
LINCOLN, NE
JENKINTOWN, PA
Showing top 10 of 30 funders.
Key Personnel
From 2025 IRS 990 filing
Heidi Grabenstatter PhD
Director
Dr Lori Levi
Director
Eden Rivera
Director
Rebecca Buchanan
Director
Catherine Valcourt-Pearce
Director
Michael Cento
Treasurer
Lisa Brown
Secretary
Ben Holocher
Vice President
Denise Croden
President
Rhonda Blumenthal
Chief Executive Officer
Showing 10 of 14 key personnel.
Frequently Asked Questions
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