Skip to main content

PHELAN MCDERMID SYNDROME FOUNDATION

Osprey, FLEIN: 04-3673104Website

Data sourced from IRS 990 public filings

PHELAN MCDERMID SYNDROME FOUNDATION The mission of the Phelan-McDermid Syndrome Foundation is to make today better and the future brighter for everyone living with Phelan-McDermid syndrome - from the moment of diagnosis to the delivery of treatments and cures.

Evidence-Based/Data-Driven/Effective Altruism
People with Disabilities
International
Community-Led/Participatory/Grassroots
Research & Evaluation
National
Medical Research
Disease-Specific Services

Annual Revenue

$1,306,884

Known Funders

30

Grants Received

45

Financial History

YearRevenueExpensesAssets
2024$1,306,884$1,437,564$2,109,869
2023$1,062,761$1,098,819$2,243,009
2022$853,648$715,263$2,113,920
2021$897,002$497,424$1,940,384
2020$560,200$455,390$1,639,670
2019$656,384$578,555$1,427,059
2018$1,199,078$899,420$1,423,117
2017$1,162,999$1,119,265$1,197,242

Top Funders

$100,000 (2023)
$34,287 (2023)
$27,500 (2021)
$25,000 (2021)
GLOBAL GENES

WASHINGTON, DC

$15,000 (2023)
$15,000 (2021)
$14,000 (2022)
$11,250 (2022)

Showing top 10 of 30 funders.

Key Personnel

From 2024 IRS 990 filing

D

Denise Croden

President

Officer
B

Ben Holocher

Vice President

Officer
L

Lisa Brown

Secretary

Officer
M

Michael Cento

Treasurer

Officer
C

Catherine Valcourt-Pearce

Director

C

Chardell Buchanan

Director

E

Eden Rivera

Director

D

Dr Lori Levi

Director

H

Heidi Grabenstatter PhD

Director

R

Rhonda Blumenthal

Chief Executive Officer

OfficerKey Employee

Showing 10 of 19 key personnel.

Frequently Asked Questions

Other Nonprofits in Florida

All nonprofits in Florida

Unlock Full Nonprofit Data

Sign up for free to access the complete funder list, financial history, program details, key personnel, and smart matching.

Unlock full data & AI matching Sign up free