FSHD SOCIETY
Data sourced from IRS 990-PF public filings
The FSHD Society funds research initiatives focused on facioscapulohumeral muscular dystrophy, primarily supporting universities and medical research institutions.
Grants (Last Year)
$0
Total Grants on File
13
Recipients Funded
10
Giving History
| Year | Total Granted | Grants Made | Avg Grant |
|---|---|---|---|
| 2022 | $413,600 | 4 | $103,400 |
| 2021 | $1,418,356 | 9 | $157,595 |
Top Grant Recipients
New Haven, CT
KANSAS CITY, KS
COLUMBUS, OH
DENVER, CO
BALTIMORE, MD
ST LOUIS, MO
KANSAS CITY, KS
MINNEAPOLIS, MN
ST LOUIS, MO
Showing top 10 of 13 grants on file.
Officers & Trustees
From 2023 IRS 990-PF filing (data available for 3 filing years)
AMANDA HILL
DIRECTOR OF CLINICAL RESEARCH
JUNE KINOSHITA
SENIOR DIRECTOR OF RESEARC
KENNETH ALEXANDER KAHTAVA
CHIEF BUSINESS OFFICER
BETH JOHNSTON
CHIEF COMMUNITY ENGAGEMENT
JAMSHID ARJOMAND
CHIEF SCIENCE OFFICER
LISA SCHIMMEL
CFO
MARK STONE
CEO & PRESIDENT
BRUCE RYSKAMP
BOARD MEMBER
JACK GERBLICK
BOARD MEMBER
MARIE MORRELL
BOARD MEMBER
Showing 10 of 23 officers and trustees.
IRS Filing History
FSHD SOCIETY has IRS 990-PF filings on record for 3 years, spanning 2021 to 2023.
Frequently Asked Questions
Other Foundations in Massachusetts
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