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EVERYLIFE FOUNDATION FOR RARE DISEASES

WASHINGTON, DCEIN: 26-4614274

Data sourced from IRS 990-PF public filings

Funds scholarships for students through a single recipient organization, focusing on rare diseases and educational support.

Operating_grantmaker Foundation

Grants (Last Year)

$0

Total Grants on File

3

Recipients Funded

1

Giving History

YearTotal GrantedGrants MadeAvg Grant
2023$433,1751$433,175
2022$405,0001$405,000
2021$295,0001$295,000

Top Grant Recipients

$433,175 (2023)
$405,000 (2022)
$295,000 (2021)

Officers & Trustees

From 2023 IRS 990-PF filing (data available for 3 filing years)

J

Julia Jenkins

President & Executive Dir.

OfficerTrustee/Director
A

Anne Kennedy

Policy & Advocacy

M

Megan Pinegar

COO

J

Jamie Sullivan

Sr. Dir of Policy

S

Shannon Von Felden

Sr Director of Adv

E

Edward Brasfield

Sr Dir of Develop

F

Frank Sasinowski

Chair

OfficerTrustee/Director
V

Vicky Seyfert-Margolis

Vice Chair

OfficerTrustee/Director
S

Stephen Groft

Treasurer

OfficerTrustee/Director
J

Jennifer Bernstein

Secretary

OfficerTrustee/Director

Showing 10 of 17 officers and trustees.

IRS Filing History

EVERYLIFE FOUNDATION FOR RARE DISEASES has IRS 990-PF filings on record for 3 years, spanning 2021 to 2023.

202320222021

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