RETT SYNDROME RESEARCH TRUST INC
Data sourced from IRS 990-PF public filings
Funds research initiatives focused on Rett syndrome and related genetic studies, primarily through universities and research institutions.
Grants (Last Year)
$0
Total Grants on File
62
Recipients Funded
6
Giving History
| Year | Total Granted | Grants Made | Avg Grant |
|---|---|---|---|
| 2023 | $9,871,592 | 16 | $616,975 |
| 2022 | $3,658,593 | 22 | $166,300 |
| 2021 | $4,584,810 | 24 | $191,034 |
Top Grant Recipients
Cambridge, MA
Cambridge, MA
Showing top 10 of 62 grants on file.
Officers & Trustees
From 2023 IRS 990-PF filing (data available for 4 filing years)
JANA VON HEHN
CHIEF SCIENTIFIC OFFICER
TIMOTHY FREEMAN
CHIEF DEVELOPMENT OFFICER
RANDALL CARPENTER
CHIEF MEDICAL OFFICER
ANTHONY SCHOENER
CHAIRMAN
STEPHANIE BOHN
TRUSTEE
RACHEL ROTHSCHILD
TRUSTEE
RACHAEL STEVENSON
TRUSTEE
MONICA COENRAADS
CHIEF EXECUTIVE OFFICER
MARCI VALNER
TREASURER
MARC TESLER
TRUSTEE
Showing 10 of 17 officers and trustees.
IRS Filing History
RETT SYNDROME RESEARCH TRUST INC has IRS 990-PF filings on record for 4 years, spanning 2020 to 2023.
Frequently Asked Questions
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